“Breathe (2am)” by Anna Nalick

I love this song. It’s a great reminder to “just breathe,” and I love the metaphors she uses.

Click for lyrics

The Boring Bit of a New Computer

You know how exciting it is to get a new piece of technology (or at least, I imagine you do because you’re reading this somehow): you want to be playing with it constantly to figure out what it does! In the case of a new computer, however, that joy is killed off when you remember you need to transfer everything from the old computer to the new one and reinstall all of your programs.

Yup, that’s the stage I’ve gotten too. I’m a photographer, too, so I have TONS of large files to swap over. That means, this is going to be a weeks long process (likely) as I transfer everything over and try to get things organized on the new computer. I really hate this part. I’ve already installed most of the programs, and I’ve moved over all of my documents. However, music and photos are going to take forever.

If you need me, I’ll be sitting at my dining table watching progress bars creep by.

Myofascial Release – My First Experience

Today I did my first myofascial release session with Wendy, a specialist that works out of my Pilates studio. I can’t really report on any sort of long-term results yet, since she said it can take 3 days before the body settles. However, my immediate experience is interesting. It’s unlike anything I’ve done before.

myofascial tissue between ribs

The cobweb looking stuff is the myofascial tissue. This is between ribs.

The myofascial system runs through literally every cell in your body, and it’s all connected. It’s the structure that holds us in a 3D form. It communicates almost instantaneously around your entire body. If you get punched in the stomach, the force can be distributed through your entire body extremely quickly due to the myofascial tissues. The tissue helps you absorb impacts and force, but it also can get stuck when doing so. When the tissue contracts, it also squeezes out it’s fluids; sometimes that fluid doesn’t return and the tissue stays contracted. Emotional things can also imprint on the fascial tissue, meaning that releasing the tissue can sometime release emotions.

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Today is Not a Good Day

I had class today. My alarm goes off at 6a because I need to leave by 7a to get to school. My classes start at 8am, but traffic gets bad about 7:30am, so I need to beat traffic to my school. Anyway. My alarm went off, and I was REALLY out of it, so I hit snooze. I think I hit it three or four times, so I didn’t get out of bed until about 6:15-6:20a. I stumbled to the restroom, and nothing would move properly. I couldn’t coordinate my limbs very well because I was completely stiff. I tried to take some deep breaths, and I realized that my ribs were in a lot of pain. I was really disoriented, foggy, and in a lot of pain. My throat hurt and I was spitting out (not coughing up) little blood clots (I think they were in my post-nasal drip, meaning I got a small nosebleed last night). Pretty much, I was miserable. While I want to be responsible and go to class, I just couldn’t shake these feelings. I ended up going back to sleep and slept until 11a. I do feel a little better now, but I’m still not doing fantastic. Since I still feel horrible, I’m glad I decided to stay home.

I’m completely drained, and I’m in a lot of pain. I don’t know if the evening Pilates class I did last night pushed me over an edge, or if I am catching Dan’s cold. Dan has been sick this week, with a sore throat and cough and fatigue. I don’t really have my typical symptoms of getting sick, however, so I don’t think I’m getting sick… but then again, it’s almost impossible to tell. I just really want to sleep and I really want to stop hurting. I did take Aleve this morning, but I guess I’m going to have to take a Tramadol again because my eyes are watering just sitting on the couch. I just have to remember it’ll pass. Either I’ll get used to it and it won’t hurt me as much, or it will go away. Either way, it’ll pass.

Remember, I do not post these posts for sympathy or pity. I post these so that I am accurately portraying life with Chronics. Life with Chronics is unpredictable and sometimes sucks; sometimes it’s great, sometimes it’s awful. These negative posts are to remind people they aren’t alone, and that sometimes the bad days just knock you down hard. But remember, it is possible to get back up.


Gastroenterologist and Neurologist Update


I went to see my gastroenterologist yesterday. I told him everything, including the fact that I’ve been pretty much stuck on a bland diet since Sunday morning (due to the Saturday night incident). (Follow-up about the Saturday night incident.) Turns out that, apparently, when you’re system is backed up it’ll send signals to your brain essentially telling it to not put anything else into your intestinal tract, making you have the urge to vomit. Not really sure why this triggered after the fact for me, but it has. Either way, he thinks it is due to my severely irritable large intestine. Apparently, the pain I have is also due to this. He said that my large intestine is so sensitive I can probably just feel the entire thing all the time, so anytime anything goes through it I can tell. Suddenly, things make so much more sense now.


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New Computer

YAY! I got a new desktop computer!

Both Dan’s and my laptops are making their way, ever so slowly, to the technology graveyard living in the office closet. Even though they haven’t died yet, it’s making us both rather nervous. Dan just started graduate school, I am in my final semester of school, and my only potential income streams are from the internet. Oh, and this blog. Losing computer access, or reliable computer access, just isn’t an option. I’ve also managed to almost completely fill up my laptop because of my photography. Then, tax refund money arrived!

Obviously, a new computer was first up for us!

It’s great and super fast. Right now, it’s just on the dining table, but it’s a lot of fun having a fully functional and speedy computer.

Though, I do now have to learn Windows 10 (so far so good) and start the long process of transferring files. But it’s still exciting! That is, if you couldn’t tell, what I’ve been doing all day (setting things up). I did have my GI appointment, but I’ll post about that later. For now, sleep is necessary.

Some New Dysautonomia Zazzle Products

I made a few new dysautonomia products on Zazzle. I’m going to be making more today and will hopefully be making more consistently. For now, the designs are still pretty simple. But I wanted to show you some new products and get some more feedback ūüôā

Check out the Chronic Illness section of my Zazzle store regularly for new designs and products! Click here to see the products!

I Had a Great Day, and Then…

… It was gone.

Now I’m writhing around in bed trying desperately to find a position for some relief while also trying to move agonizingly slowly because I don’t want to shake my stomach up and vomit. Don’t know what happened, but suddenly the urge to vomit appeared and it won’t go away, even with Zofran. Dan thinks I ate too many allergens. I don’t think that’s the whole picture, but all I do know is I feel awful.

I don’t want to vomit because last time I started I needed to go to the ER to stop… But I also kind of want to so I might feel better.¬†What would be really nice would be the ability to remove my stomach until it calmed down. Oh, and sleep would be fantastic.

Why I Think My Dental Checkup Went So Well

Thankfully, I woke up feeling a bit better (yesterday was bad);¬†especially thankful since I had a dentist appointment this morning. Unfortunately, the dentist appointment took a little more out of me and seems to have triggered a minor flare up (very minor, just enough to be obnoxious). You’d think that would mean I’d want to avoid the dentist, but NO. I very strongly believe in 6 month checkups with the dentist.


I love how clean my teeth feel after every checkup!

This belief might also sound weird given the fact that I definitely am no poster child for dental hygiene. Embarrassingly, …click for more