Just Breathe – Great Art for Chronics

 

Just a friendly reminder from one Chronic to another: Sometimes, you just have to take a second and just breathe.

This is also available as a wood wall hanging and on a spiral bound notebook!

Probably Not Good

 

I’ve been having odd neurological symptoms as of late:menschliches nervensystem

  • I’m still getting regular headaches, almost daily. Some of them are rather intense, but I’m not sure if the others are low intensity or if I got used to them.
  • My arm pain is still really intense still… but a little tiny bit better because I’ve been taking Tramadol regularly. I can’t stand nerve pain like that. Unfortunately, my left arm has started to get a lot of the same symptoms (tingling, numbness, elbow pain, and neural tension). At least the left arm isn’t as intense as the right. (arm 1, 2, 3)
  • My nausea seems to be getting worse. I don’t know if that is from my nervous system or something else. (nausea 1, 2, 3)
  • The thoracic vertebra (the ones at the ribs) pop constantly, and painfully. I think my spine is compressing for some reason.
  • Muscle weakness is getting a lot worse for some reason. I’m exercising a bit more, but it feels like I’ve been exercising less.
  • My muscles burn every time I stretch them. Even if I stretch them after sitting on the couch or lying down. I don’t know why my muscles are always burning like this when I stretch them.
  • Dizziness is coming back slightly, though my cardiologist’s MA thinks it might be from my body adjusting to the fact that my resting heart rate is now in the upper 60s now that it’s controlled.

As you can see, troublesome. Continue reading

Grampa Update #5

Sorry it’s been quite some time since I’ve updated y’all about my grandparents. Don’t panic.

Grampa had been at home over a week now. He’s supposed to be using the statutory to go upstairs, but it’s slow so he doesn’t. According to my parents, he really isn’t listening to most of the doctor’s orders about physical activity. Oh well. Otherwise, he’s doing great!

Grama, actually, is the one having problems. Continue reading

How to Clean with a Moderately Severe Dust Allergy

I’m allergic to dust. Yes, you read that properly, dust. Everyday house dust. (Read post 1 and 2 about this allergy.) As you can imagine, this makes things very complicated. Doctor’s orders say I’m supposed to stay away from dust, especially airborne dust, which also means keeping my house as dust free as possible. Do you see the catch?

Cleaning is very complicated due to the dust issues. First of all, let me emphasize the importance of good air filters if you have a dust allergy or sensitivity. Air filters are CRUCIAL!!! They are also necessary when cleaning. airfilterI have two different types of air filters, three filter units total. I have two Winix True HEPA filters, and love them. After we got them, we cleaned thoroughly, and it took significantly less time for a dust layer to accumulate. They also automatically sense air quality and will adjust the fan speed as necessary (if on “auto”) and can be put on a quiet “sleep” mode for overnight. We have one Winix on the main level of our house, and one in our bedroom. We also have a small Holmes HEPA mini-tower air purifier (I bought it from Target about 5 years ago). We buy the best filters we can for the Holmes, and it runs 24/7 in the office. All the air filters run 24/7. I’m not getting anything for these links, but these are the ones we use and I definitely recommend the Winix ones.


How to Clean and Dust Your House When You’re Allergic to House Dust

Continue reading

The Day of Love

Happy Valentine’s Day!

I know, somehow, this became all about couples and romantic love… But I really just think of it as celebrating love in general. It just so happens that I have a fantastic romantic love to celebrate, but all love is special. The world needs more love, so let your heart shine today!

❤ to you all!

Cute Compression Socks on Sale!

This is not a sponsored post… I just love fancy socks.

RejuvaHealth.com is having a small sale! They have a coupon code too: CELEBRATE. The code takes an extra 10% off, even sale products! I just bought three new pairs of compression socks, and I’m super excited about it. I love my socks!

rejuvahealth sale

I got the Chevron Slate socks, Rose socks, and the Sheer Floral knee highs. I’ve been stalking their sale page in hopes of finding some of their medium strength (20-30 mmHg) socks. As you can probably see, I got two pairs of the 20-30 mmHg socks, and another pair of the 15-20 mmHg. I have two pairs of the 15-20 mmHg, and they’re great for light compression on a daily basis. I can’t wait, however, for the stronger ones for when I go do things where I’ll be on my feet more!!!!

(I’m still working on a styling post, by the way. As it turns out, I don’t fit a lot of my clothes that I want to wear them with. Hopefully, summer will yield more styling options.)

Why Does It Take So Long To See Doctors?!

Seriously.

Why?!

Good news is, I have an appointment setup to see a neurologist that specializes in neuromuscular disorders but works in an office with other neurologists that specialize in other things like MS and vascular neurology.

The bad news is, the earliest appointment is for February 26th. But better than never.

Good thing I have plenty of Tramadol and metaxalone.

I Need Some Research Help – Possible New Muscular Symptom

Today was my Reformer for Recovery Pilates class. We started by doing a few gentle squats. When I say a few, I mean three or four. Gentle means a very shallow squat, just as far as is comfortable, and no added weight at all. I did one just fine. Then every single other one had my quadriceps (thigh muscles) burning. We weren’t holding them, we were just dipping down and straightening up. The muscles were only burning when I was in the squat position. I was barely squatting. As soon as I’d stand up, the burning would stop. The burn is EXTREMELY intense, and makes me want to collapse; pushing through the pain is almost impossible.

light squat

This photo shows me squatting (I took it just for this post) about the same I did in class. I may be a little lower than I was in class, actually. And yes, getting this photo burned really badly again, but I am currently on 1/2 a Tramadol and a full metaxalone so it wasn’t as intense. As you can see, these aren’t shouldn’t be very taxing squats.

Continue reading

I Need Feedback on Dysautonomia Zazzle Designs!

I’d like some feedback about my dysautonomia design for Zazzle. I want to make more products, and I’d like to make some more designs. I’d also like to make some for general chronic/rare illnesses and fibro. I’m not super fantastic at designing, but I’d like to get better, so practice is necessary!

Can you tell me what is good about this design, or what may need tweaking? What kind of things do you think I could do to make the other designs I’d like to market? What kinds of colors should I do for general chronic or rare illness awareness designs? What other products should I offer this design, or other designs, on?


My Current Dysautonomia Design & Products

 
Continue reading

Unexpected Perspective Shift

I don’t believe in failure
Cause I know the smallest voices, they can make it major

-from “Seven Years” by Lukas Graham-

I heard this song for the first time today. I was in the car, driving home from school. This song is a really good song, with a unique beat and beautiful, heartfelt lyrics. The DJ had compared it to the “100 Years” by Five for Fighting. I wouldn’t put it quite at the same level, but it’s very similar in a lot of ways. But this specific quote really struck me at the time. I just watched the video a second time and didn’t notice it as clearly. Obviously, it was one of those things I really needed to notice at the time.

Click Here to read how this quote shifted my perspective