Back Pain, Still

This pain is trying to kill me.

I do not like taking so much medicine… but I can’t function. I can’t sleep. I can’t think.

I wish I knew what I did. Then again, I honestly don’t think I did anything.

I just want it to stop!!!!

(Back pain post 1, post 2.)

“Grieving The Life I Once Had” – from HuffPost

A little while ago, I read this post on HuffPost:

Grieving the Life I Once Had
by Naomi Sakin

(I actually got there from Dysautonomia International‘s Facebook page.)

Facebook is really the only way I get any of my news. The only news source I follow directly is National Geographic, and that’s primarily because I have admired their photography for as long as I can remember. Anyway, that’s off topic.

The article, is heartbreaking. It’s heartbreaking because it’s real. So devastatingly and painfully real. You don’t find out what she has until the end, but it doesn’t matter. I think anyone with a chronic condition can relate, especially one that you weren’t born with, or that you were born with that didn’t get diagnosed or show up until later in life, or one that changed as you grew, or one that is progressive that suddenly throws you curve balls that alter your day-to-day. Really, anyone. Anyone that no longer can do what they used to.

Take caution reading the article. If you are fragile, you will cry. I teared up, but luckily I’m not doing too badly, mentally, right this moment so I didn’t lose it. Yesterday, I would have flat out bawled for hours.

I am kind of proud as to what my unconscious and fingers decided to add to my Facebook share and wanted to share it with you:

The life we once lived gets torn from us in an instant. The life we once lived gets replaced by pain and pills. Still, we are somehow expected to carry on. We adjust, and we move forward.
– Elizabeth Bulfer

Sometimes, we don’t know how we move forward, but we always seem to move forward. That’s why I started this blog: to move forward, to remember to always move forward, to give me a reason to move forward (if only to make one more post), and to remind others to move forward.

Together, we can carry the enormous weight of these illnesses and our grief.

Together, let’s move forward.

Featured Image from the article

Back Pain: Gone and Back Again

So I wrote this post just after 4am last night, on my phone, originally. My phone and WordPress are NOT friends and it deleted it apparently. This happens a lot. Ugh. So I will try to rewrite it now that I’ve noticed.

Overnight, it appeared that my back healed because I woke up on Friday morning feeling almost “normal” again. My back was sore, sure, but it definitely wasn’t anything near the severe back pain I was experiencing on Thursday; I wouldn’t even really call it “bad pain” let alone “severe pain.” I took some Aleve and was careful, but carried on with my day. By Friday evening, I felt pretty much 100% and barely noticed my back at all.

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Severe Back Pain Today

Sometime last night, I was woken up by pain in my right SI joint (sacroiliac joint). The pain was intense enough to wake me up, something that doesn’t happen often, but was something I’m familiar with. It was the pain that comes with the joint locking up. Sadly, locked SI joints are common, especially in the right. Once I identified pain, I stretched in an attempt to resolve it, and went back to sleep.


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Internal Struggle

Part of my extended absence has been due to a massive internal struggle I’ve been dealing with.

I started this blog, in part, to journal about all the aspects of my illnesses. This includes all of the aspects of my physical symptoms AND my mental symptoms. This journaling is to help me deal with what is going on in my life, and to help anyone else that is struggling not to feel as alone.

Now, where is the struggle? Well, I have found myself holding back and not being completely honest with you. I’ve been leaving things out, under-telling symptoms, playing down physical symptoms, and just not touching on the mental aspect at all.


The answer to the why is where the struggle comes in.

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Rest, Finally

Oh man, I can hardly believe it… Stuff is over. My body has been on high for the last several weeks and my calendar is suddenly EMPTY. Mom left this morning, and I went to Verizon this afternoon to get the stuff with my replacement phone figured out. But then all I had to do the rest of today was to get my replacement phone setup! Yay!

However, since I’ve been on high for so long, my body doesn’t want to decompress. I have crazy knots everywhere, and I have a crazy intense “forgetting everything” type of feeling. And migraines. Ugh. I had one that was pretty bad when Dan got home today, that hit quickly, and then the Excedrin either wore off after two hours or I got hit by a second one… either way, ugh. Plus, stomach issues. Hopefully, however, after a few more days of actually resting, my body will actually believe me that nothing is urgent and come out of the “emergency” stage.

Tomorrow, I’m going to read! I’m also going to get my allergy shots and drop off my old phone at the post office and have my individual appointment with Joleen. But mostly, I’m going to relax and just read 🙂 It’ll be fantastic!



MIA A Little Longer

Life is Hectic

I had my last classes yesterday! I just checked my grades though and had to email one of my teachers because she’d said that the papers should be posted by 5pm yesterday and mine still hasn’t been graded and it was turned in two hours before the deadline. However, without the paper grade, I have an A in that class! My other class is also an A. So I if I got an A on my paper, then I will have an A in both of my classes which means that I’ll be graduating on another 4.0 semester!!!!! 😀 Exciting!

You would think my life would calm down now, but not quite yet.

My graduation is on Saturday, which means my family is flying in from California. I’m excited that my family is visiting 🙂 This is the first time my Dad and sister have gotten to see my house. It also means that we have a lot to do to get it ready. We are also having a party on Saturday, so we have a lot to do to get ready for that too. I’m really sore from stuff yesterday, so I’m taking a break to write this but I really need to get back to my to-do list.

AFTER my graduation stuff, THEN I’ll have time. There are several things I want to write about… I just need the time! Until then, I hope you all are doing well. I’m alive, I promise.

In Need of Spoons…

Does anyone have any extra spoons?



My family is arriving Friday morning and I have a LOT to get done around the house to get ready for my graduation party Saturday before they get here.

Anyone have spoons they don’t need to help me get thru the weekend?

special spoon

On a positive note, I no longer have any classes!!!!!