My name is Elizabeth Bulfer. I’m in my late 20s, and I’m a Chronic Illness Warrior!
I have several chronic illnesses, some of which I’ve had for a long time, some that I wasn’t diagnosed with until I was in my 20’s but have had for a long time, and some that didn’t develop until I was in my 20’s. I’ll explain my illnesses in more depth in my first posts, but here is the list: allergies, asthma, autism spectrum (level 1), dysautonomia, eczema (ear canals), eosinophilia, eosinophilic esophagitis, fibromyalgia, ice pick headaches, insomnia, irritable bowel syndrome (C-type), joint hypermobility syndrome, mast cell, migraines, other specified depressive disorder, plantar fasciitis (chronic), temporal mandibular joint dysfunction.
My husband, Dan, and I live in Colorado now, but we’re both from different states originally. Dan is originally from Wyoming and I’m originally from California. He is a year older than me, and we met when I came out to Colorado to attend college. I ended up joining a club that he was an officer in, and we hit it off pretty quickly. We got married June 14, 2013, on the best day of my life and our 4.5 year dating anniversary. By our wedding day, we’d already dealt with more than our share of illness and drama. Our relationship is the one thing I can always count on in life, and it helps make everything else a little easier to deal with.
I decided to start this blog to spread awareness for my illnesses, provide information about the illnesses, and to hopefully help other chronic illness sufferers get through the darkness and confusion that comes with a new diagnosis. When I was initially diagnosed with my first rare chronic condition, I felt as though I was the only person in the world that had it; which is a feeling I am hoping my blog can help other newly diagnosed patients deal with.
Please check out my Invisible Illnesses board on Pinterest for even more information (and some chuckles) about my conditions.
3 thoughts on “The Life of the Lizz (About Me)”
Elizabeth, your blog will soon be added to our Actually Autistic Blogs List (anautismobserver.wordpress.com). Please click on the “How do you want your blog listed?” link at the top of that site to customize your blog’s description on the list (or to decline).
Judy (An Autism Observer)
Hi Elizabeth – Jayne here from our CIB group. Your dysautonomia symptoms sound SO like mine. It’s possible your gut problems are caused by your adrenaline issues. You also sound like you might have EDS? Anyway, I will be following your FODMAP journey closely. Carbs and I dont mix – makes my bloating so much worse! Just thought I would say hi and to let you know there’s someone else out there with some similar shit!! Beta blockers saved my soul but I know not very compatible with asthma.
I’ve had gut problems my entire life, so I’m thinking the dysautonomia just exacerbated them instead of caused them.
My EDS diagnosis is going to take quite some time. We’re 99% sure I have EDS type 3 (hypermobility type), since I have Joint Hypermobility Syndrome (a lot of research says they’re the same thing). I don’t see the geneticist until August of this year, however.
I’m really hoping it helps! It might be worth trying it on your own, (the link in my initial post has a lot of good resources) if you think it might help. I was debating trying it on my own, but since it eliminated all my favorite foods I waited for the dietitian to tell me what to do 😛
I’m on beta blockers. I had no idea they messed with asthma… That might explain some things. I thought winter was just messing with me (I raised the dose when winter hit), but I’ll have to ask about the beta blockers! Thanks!