Autism Acceptance Month 2018 – Kickoff

The month of April is Autism Acceptance Month! It is not an “awareness month.”

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Awareness and acceptance are different actions. Continue reading

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World Rare Disease Day 2018

A rare disease/condition is defined as a condition that effects less than 200,000 people (in the USA). There are more than 7000 rare diseases and conditions currently identified, with more being discovered daily. There are more than 350 million people in the world living with a rare disease or condition, with about 30 million of them living in the United States (which is about 10% of the population). Sadly, since so few people are impacted by each individual condition, most rare diseases do not have a single FDA approved treatment and patients (and doctors) are left grasping at straws to find ways of managing the condition. Because there are no treatments, many patients are literally left to die. (Information from Global Genes RARE Disease Facts page)

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These are some of the reasons we have World Rare Disease Day.

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The Appointment from Hell

I am not using names for legal protection. While I want to scream this doctor’s name from the rooftops and tell everyone in the world to never ever go see this jerk, I know that if he finds it I could get sued for libel. Instead, I am writing this to educate and warn people that doctors like this exist, and as a form of therapy for myself to help me process this awful appointment.

I am also not using names in case this does end up in a legal case. During legal investigations and such, you’re not allowed to talk about the case, so I don’t want to cause any conflicts by having it published. Well, obviously my husband’s name appears in there because he was in the appointment and he is already not anonymous on this blog. Continue reading

Feeling Sad During the Holidays

Please watch this video by Jessica, she’s amazing and this video really hit home. Warning: you may cry during the video!

Originally, I was going to do a different post, but this video just struck me.

Being sad at Christmas can really feel like you’re breaking some sort of unspoken rule. But, honestly, I’m pretty sure it’s relatively normal. Christmas (and this season in general) has such a focus on happiness and blessings and family, that if any of those areas aren’t “perfect” it stands out like a neon sign.

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Eosinophilic Esophagitis – What is it Anyway?!

I have eosinophilic esophagitis. I’ve briefly explained it before in my “World Rare Disease Day” post and in “My Chronic Illnesses part 3.” However, I wanted to explain it in more detail because it’s probably the condition I get asked about the most.

I do feel the need to add my disclaimer to this post: I AM NOT A DOCTOR! The information in this article is for awareness only and is not intended to diagnose or treat any conditions. If you suspect you may have eosinophilic esophagitis, please talk to your doctor before taking action.

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Asthma Storylines Health Tracking Application – Review

Disclaimer: For my honest review, I am being compensated through the Chronic Illness Bloggers group. Even though I’m receiving compensation for my review, all opinions of the product/service are accurate and reflect my true thoughts about the product/service. I was in no way influenced by the company or CIB.

I was selected to review the “Asthma Storylines” mobile application (for Android) by Health Storylines (link). For context, I was using this application on an LG G5 running Android Nougat (7.0). I used this app daily for one week prior to writing this review, and overall I’m quite impressed! Of course, there are a few things that could use some tweaking (like in every single application I’ve ever used, of any type), but it’s an impressive health tracking app!

Actually, I wasn’t just impressed, I was extremely happy. It’s a very thorough health tracking app, and definitely not just for asthma management – despite the name. There are several different tools to utilize, and the ones I used most extensively were: Symptoms, Medication Tracker, Routine Builder, and Daily Asthma Control. Since I fiddled with the rest of the app as well, my overall impression (at the bottom) takes the entire experience into consideration, not just these four tools. Continue reading

World Rare Disease Day 2017: Infographic

Today is World Rare Disease Day! Please help start the conversation about rare diseases and conditions. So many people deal with rare conditions on a daily basis, but many must struggle for years before getting the proper diagnosis. Once diagnosed, it can then become a major challenge to find treatments and support! Wear denim today to show that you #CareAboutRare and let’s get the conversation started!

You can learn more about my personal rare diseases in my first WRDD post!

KmS Mineral Essentials Clear Skin Challenge – Conclusion

This product was given to me by KMS Mineral Essentials for trial use. Even though I received this product as a gift, all opinions expressed in this posting are my own, and all results are genuine. I do not receive any additional compensation if you click on any of the links included in this post.


For the month of January, I took part in the KmS Mineral Essentials “Clear Skin Makeup Challenge.” To learn about what that was, and what that entailed, see my first post about it!

Originally, I wanted to do weekly posts, but I honestly wasn’t seeing that much difference in my skin. I was getting more compliments, and the texture did improve though! (I just look too closely at my face regularly apparently.) Visually, however, I think my main problem is now the size of my pores. Continue reading

KmS Mineral Essentials Clear Skin Challenge – The Beginning and Week 1

This product was given to me by KMS Mineral Essentials for trial use. Even though I received this product as a gift, all opinions expressed in this posting are my own, and all results are genuine. I do not receive any additional compensation if you click on any of the links included in this post.


A few weeks ago, I applied for consideration to participate in the KMS Clear Skin Challenge… And I was chosen as one of four women who get to participate! I’m incredibly excited about this opportunity, and can’t wait to share my progress with you!

What is the KMS Clear Skin Challenge?

KMS Mineral Essentials is a mineral makeup specially formulated for people with sensitive skin and acne. Kristi Shannon-Brooks founded KMS Mineral Essentials 9 years ago, specifically to help those of use with “problem” skin. See, most of us with problem skin cannot wear mineral makeup of any kind without it causing even more problems for us; that’s because most mineral makeups contain bismuth oxychloride. Bismuth oxychloride can cause skin irritation for everyone – even those people with “normal” skin can have problems with products containing bismuth oxychloride! So, Kristi created KMS Mineral Essentials, a makeup line with formulas free from bismuth oxychloride, other common irritants, talc, fragrance, gluten, and parabens. The makeup doesn’t just make you look good without irritating your skin, it is also designed to help your skin! Yes, while wearing it, the makeup works on your skin to help reduce various problem conditions!

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What is POTS? A Short Video by Dysautonomia International


What is POTS?

  • POTS is an acronym. POTS = Postural Orthostatic Tachycardia Syndrome
  • A type of dysautonomia
    • Dysautonomia = dysfunction of the autonomic nervous system
  • Characterized by a rise in heart rate by 30 beats per minute (or more) within ten minutes of standing
    • or a standing heart rate of 120bpm or more
  • Blood pressure can either increase, decrease, or stay the same
  • A collection of symptoms that can impact every part of your body
  • A life altering condition
    • quality of life analogous to congestive heart failure and COPD
  • Worth fighting!

Video from Dysautonomia International‘s Facebook Page