The Appointment from Hell

I am not using names for legal protection. While I want to scream this doctor’s name from the rooftops and tell everyone in the world to never ever go see this jerk, I know that if he finds it I could get sued for libel. Instead, I am writing this to educate and warn people that doctors like this exist, and as a form of therapy for myself to help me process this awful appointment.

I am also not using names in case this does end up in a legal case. During legal investigations and such, you’re not allowed to talk about the case, so I don’t want to cause any conflicts by having it published. Well, obviously my husband’s name appears in there because he was in the appointment and he is already not anonymous on this blog. Continue reading

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Feeling Sad During the Holidays

Please watch this video by Jessica, she’s amazing and this video really hit home. Warning: you may cry during the video!

Originally, I was going to do a different post, but this video just struck me.

Being sad at Christmas can really feel like you’re breaking some sort of unspoken rule. But, honestly, I’m pretty sure it’s relatively normal. Christmas (and this season in general) has such a focus on happiness and blessings and family, that if any of those areas aren’t “perfect” it stands out like a neon sign.

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Eosinophilic Esophagitis – What is it Anyway?!

I have eosinophilic esophagitis. I’ve briefly explained it before in my “World Rare Disease Day” post and in “My Chronic Illnesses part 3.” However, I wanted to explain it in more detail because it’s probably the condition I get asked about the most.

I do feel the need to add my disclaimer to this post: I AM NOT A DOCTOR! The information in this article is for awareness only and is not intended to diagnose or treat any conditions. If you suspect you may have eosinophilic esophagitis, please talk to your doctor before taking action.

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Asthma Storylines Health Tracking Application – Review

Disclaimer: For my honest review, I am being compensated through the Chronic Illness Bloggers group. Even though I’m receiving compensation for my review, all opinions of the product/service are accurate and reflect my true thoughts about the product/service. I was in no way influenced by the company or CIB.

I was selected to review the “Asthma Storylines” mobile application (for Android) by Health Storylines (link). For context, I was using this application on an LG G5 running Android Nougat (7.0). I used this app daily for one week prior to writing this review, and overall I’m quite impressed! Of course, there are a few things that could use some tweaking (like in every single application I’ve ever used, of any type), but it’s an impressive health tracking app!

Actually, I wasn’t just impressed, I was extremely happy. It’s a very thorough health tracking app, and definitely not just for asthma management – despite the name. There are several different tools to utilize, and the ones I used most extensively were: Symptoms, Medication Tracker, Routine Builder, and Daily Asthma Control. Since I fiddled with the rest of the app as well, my overall impression (at the bottom) takes the entire experience into consideration, not just these four tools. Continue reading

World Rare Disease Day 2017: Infographic

Today is World Rare Disease Day! Please help start the conversation about rare diseases and conditions. So many people deal with rare conditions on a daily basis, but many must struggle for years before getting the proper diagnosis. Once diagnosed, it can then become a major challenge to find treatments and support! Wear denim today to show that you #CareAboutRare and let’s get the conversation started!

You can learn more about my personal rare diseases in my first WRDD post!

KmS Mineral Essentials Clear Skin Challenge – Conclusion

This product was given to me by KMS Mineral Essentials for trial use. Even though I received this product as a gift, all opinions expressed in this posting are my own, and all results are genuine. I do not receive any additional compensation if you click on any of the links included in this post.


For the month of January, I took part in the KmS Mineral Essentials “Clear Skin Makeup Challenge.” To learn about what that was, and what that entailed, see my first post about it!

Originally, I wanted to do weekly posts, but I honestly wasn’t seeing that much difference in my skin. I was getting more compliments, and the texture did improve though! (I just look too closely at my face regularly apparently.) Visually, however, I think my main problem is now the size of my pores. Continue reading

KmS Mineral Essentials Clear Skin Challenge – The Beginning and Week 1

This product was given to me by KMS Mineral Essentials for trial use. Even though I received this product as a gift, all opinions expressed in this posting are my own, and all results are genuine. I do not receive any additional compensation if you click on any of the links included in this post.


A few weeks ago, I applied for consideration to participate in the KMS Clear Skin Challenge… And I was chosen as one of four women who get to participate! I’m incredibly excited about this opportunity, and can’t wait to share my progress with you!

What is the KMS Clear Skin Challenge?

KMS Mineral Essentials is a mineral makeup specially formulated for people with sensitive skin and acne. Kristi Shannon-Brooks founded KMS Mineral Essentials 9 years ago, specifically to help those of use with “problem” skin. See, most of us with problem skin cannot wear mineral makeup of any kind without it causing even more problems for us; that’s because most mineral makeups contain bismuth oxychloride. Bismuth oxychloride can cause skin irritation for everyone – even those people with “normal” skin can have problems with products containing bismuth oxychloride! So, Kristi created KMS Mineral Essentials, a makeup line with formulas free from bismuth oxychloride, other common irritants, talc, fragrance, gluten, and parabens. The makeup doesn’t just make you look good without irritating your skin, it is also designed to help your skin! Yes, while wearing it, the makeup works on your skin to help reduce various problem conditions!

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What is POTS? A Short Video by Dysautonomia International


What is POTS?

  • POTS is an acronym. POTS = Postural Orthostatic Tachycardia Syndrome
  • A type of dysautonomia
    • Dysautonomia = dysfunction of the autonomic nervous system
  • Characterized by a rise in heart rate by 30 beats per minute (or more) within ten minutes of standing
    • or a standing heart rate of 120bpm or more
  • Blood pressure can either increase, decrease, or stay the same
  • A collection of symptoms that can impact every part of your body
  • A life altering condition
    • quality of life analogous to congestive heart failure and COPD
  • Worth fighting!

Video from Dysautonomia International‘s Facebook Page

October is Dysautonomia Awareness Month!

Dysautonomia Awareness Month is here!

I am being quite active this year. I don’t think I was even really aware of it last year, or if I was, I was still kind of embarrassed and confused by my diagnosis so I definitely wasn’t as active and excited about it. But this year, oh my goodness! If you are following me on Facebook or Instagram, or both, you have probably been quite surprised in the uptick of my postings and the sheer amount of turquoise.

By the way, dysautonomia’s official awareness color is turquoise! And, if you also weren’t aware, that is one of my favorite colors and has been for years now, so it’s an awesome coincidence and just makes this even better!!!! ALL THE TURQUOISE! *cough sputter* Sorry about that.

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Supplements Carry Risks Too

Don’t get me wrong, I am not just blindly wanting you to follow “Big Pharma” down the rabbit hole of taking more drugs and needing drugs to counteract the side effects of those drugs. Actually, I am all for all sorts of different combinations of lifestyles. If you love taking pharmaceuticals, then go take your pharmaceuticals and I’m so happy that they make you feel better! If you love taking supplements, then please go take your supplements and enjoy your life! If you love combining the two, then go do that too and enjoy feeling better! Woot for feeling better and managing our symptoms the best way we know how!!!

Anyway. Now that that is over, here we go. The point of the post 😛

Some people don’t realize that supplements can carry just as many risks as pharmaceuticals can. In fact, I would argue that, because of the state of “common knowledge” they are more dangerous. Why do I say that? Simply because people read an “all natural” label and are willing to pop it into their mouth without learning anything else about it… leading to potentially deadly consequences.

Wait, did I just say deadly?

Yes, yes I did. Continue reading