My neck pain and headaches have been getting worse lately, and I noticed that they are significantly worse when I am upright for longer periods of time. I also started getting headaches that are either (or possibly both) occipital neuralgia or trigeminal neuralgia. After some research, I discovered that sometimes these symptoms can be due to craniocervical instability (CCI) which is common in people with connective tissue disorders. To see if CCI is causing any problems, they use an upright MRI.
I talked to my neurologist about it, and he agreed an upright MRI could show us something that my supine (flat on my back) MRI had not. He found a place nearby that did them, and filled out the orders for me.
Image of my upright MRI. This view is as if you were staring at my left ear (you can see my chin pointing towards the left of this image).
“Self-care” has really been a buzz word lately, hasn’t it? But, that’s for good reason, taking care of yourself really isn’t a luxury so much as it is a necessity. If you are at your wits end and have gotten to the point where you have started to “lose yourself” (you know, that moment when you say “wait, who am I anymore?!”) then you just can’t effectively serve/help/interact with the people around you!
Self-care can be as simple as locking the door when you shower so you won’t be interrupted, taking 15 minutes in the morning to enjoy your favorite beverage, or spending 5 minutes playing your favorite game on your phone while you wait for something to happen (like waiting for the kitchen timer to go off). It can also be extremely elaborate, like an entire spa day or going on a vacation (or daycation) by yourself!
These DIY aromatherapy bath bombs are somewhere in between the simple self-care and elaborate self-care. They feel extremely indulgent to use, but they only need about 20 minutes to assemble several of them and about a 20 minute bath to utilize them (though, I’ve found my baths last a tad longer when they feel this luxurious 😉 so, whatever you have time for). Continue reading
In the middle of December, my immune system decided to crash. It did this once, several years ago. The major difference is that back then, we had an obvious trigger, and this time it just happened. It’s now the last half of February, and I’ve been sick more than I’ve been okay. Tho, I was just healthy for two weeks prior to my current issue.
I write a bit more about it here: Rough Start to 2018
I am not using names for legal protection. While I want to scream this doctor’s name from the rooftops and tell everyone in the world to never ever go see this jerk, I know that if he finds it I could get sued for libel. Instead, I am writing this to educate and warn people that doctors like this exist, and as a form of therapy for myself to help me process this awful appointment.
I am also not using names in case this does end up in a legal case. During legal investigations and such, you’re not allowed to talk about the case, so I don’t want to cause any conflicts by having it published. Well, obviously my husband’s name appears in there because he was in the appointment and he is already not anonymous on this blog. Continue reading
I’ve known Izzy and her mother for a long time now. I first met them when I was working retail, her mother (Elly) was my manager. We quickly became really good friends. Periodically, Elly’s daughters would come visit (Izzy and AW) at the store, so I had met them several times. I babysat a few times, because Izzy was only about 7 and AW was only about 4 years older. Then, when Izzy was 9, they asked me to be a nanny. I nannied her for about year before my wedding. We spent a ton of time together, and it was fun watching her grow up.
We lost touch for a bit (well, we followed each other on social media, but hadn’t talked in person in a long time) due to a series of moves which included her moving out of state.
Then, at the beginning of this month, we got a chance to have lunch (Dan and I met up with Elly and Izzy, AW was still out of state). I found out that Izzy had been struggling with atrocious migraines that would last for a week or longer and had been severely impacting school, and had required several ER visits. Since Elly was having a hard time taking all the time off to take her to all the doctors and ER trips, I offered to help (since I work for myself).
I’m currently working on a different post that will be a little more fun, but it’s taking quite some time. I’ve been having an extremely rough start to this year, and it’s showing in literally everything I try to do. I’ve even started to appear sick, which is worrisome because normally I don’t look sick or tired (except facial expressions) on a regular basis – but now there are dark circles forming under my eyes, and my eyelids are always a little too pink and puffy.
It’s easiest to post on Instagram regularly, since I don’t need a computer and computers can cause me migraines. I would recommend following me on Instagram to get updates the fastest: findinglifessilversun on Instagram.
2017 was an extremely busy year for both of us (Dan and me). I was writing my “Look Back” post and it got extremely long, so I needed to divide the year in half! You can find the first half of the year here: “Look Back part 1.” This post covers July through December 2017!
I followed up with my cardiologist, but had to see the nurse practitioner because his schedule was too full. I don’t like seeing NP’s for cardio because they can’t ever do anything for me. At least she talked to my doctor and then called me with how to change my medications.
2017 has been a chaotic year for both Dan and me. Honestly, it’s hard for me to even wrap my head around because it flashed past so quickly – I feel like I haven’t gotten to take a break since last Christmas!
I wanted to write up a little summary of our year, both so you can know what we have been up to, and so that I can have something to look back on myself. Since this is a summary, I will include links back to any relevant posts so you can read more detail. All links are either to my personal blog posts or Instagram posts.
My pelvis and back started causing a lot of problems in October 2016 (read more here and here). By January, I was in excruciating pain 24/7 and having to spend most of my time on the couch. Thankfully, I saw a new doctor (a physiatrist) and at the end of January, I got a cortisone injection into my right SI joint.
I hope you were all able to find some joy in this holiday season in whatever circumstances you found yourself in – I know the holidays can be very difficult for some people.
Personally, I extremely overdid it and my body crashed hard on Christmas day. Thankfully, our Christmas day is very relaxed and so I kept from overdoing it even more. Unfortunately, on the 26th, I woke up in extreme pain because I had managed to dislocate my L5 vertebra and my sacrum (again). My vertebrae dislocate rotationally, meaning they rotate like they’re supposed to, but get stuck rotated and won’t go back into place properly without manual manipulation. I was at a “chronic illness ten” meaning that I would have gone to the ER had I not known exactly what it was and instead just kept doing what little I could to keep my brain distracted. Experiencing “chronic illness ten” pain is frustrating, because unless someone knows you extremely well they have no idea how badly you are truly suffering.
Please watch this video by Jessica, she’s amazing and this video really hit home. Warning: you may cry during the video!
Originally, I was going to do a different post, but this video just struck me.
Being sad at Christmas can really feel like you’re breaking some sort of unspoken rule. But, honestly, I’m pretty sure it’s relatively normal. Christmas (and this season in general) has such a focus on happiness and blessings and family, that if any of those areas aren’t “perfect” it stands out like a neon sign.