For the past two years, I have had rather severe nerve pain in my right arm. I haven’t talked about it a whole lot because we had no idea why it was happening or what we could do about it, so I just tried my best to keep going despite it. The past six months, however, the pain has gotten to a point where I just cannot ignore it any longer.
I am right hand dominate, so not using my right arm just isn’t an option for me. These past six months, I have had to give up writing anything by hand past a few sentences, change how I use my phone, modify my typing, and change a lot of my habits with how I move around during the day.
Respiratory infections, sinus infections, ear infections – oh my!
Gastrointestinal infections, viral infections, bacterial infections – oh, die…
Currently, I’m extremely ill. I have some sort of awful infection in my head and GI system. I’ll spare you all of the TMI details, but let’s just say I’m a giant ball of disgusting. Lots of phlegm is involved, nausea, and too many trips to the restroom. There’s also severe full body aches and bone crushing fatigue. It’s not pretty.
It got me thinking, what are some must-haves for surviving a nasty infection like this? Here are my product recommendations (and why I recommend them) for surviving an infection while dealing with chronic illnesses. Continue reading
If you didn’t read the first post, please read “Izzy’s Battle with an Aggressive Brain Tumor” to learn who Izzy is and the first half of the story.
Izzy’s biopsy was performed on January 30th. It went well, and she was cognitively back to herself as soon as she woke up from anesthesia! However, she was really struggling with nausea (due to the anesthesia and chemo). She was in the hospital for a few days to recover, and was able to go home on February 1st. Then, we all just had to wait on the results!
Izzy and her older sister AW hanging out in her room. That giant moose is at least 5 feet long (I think it’s actually 6 feet long). I found how much stuff they managed to cram into the bed comical!
A rare disease/condition is defined as a condition that effects less than 200,000 people (in the USA). There are more than 7000 rare diseases and conditions currently identified, with more being discovered daily. There are more than 350 million people in the world living with a rare disease or condition, with about 30 million of them living in the United States (which is about 10% of the population). Sadly, since so few people are impacted by each individual condition, most rare diseases do not have a single FDA approved treatment and patients (and doctors) are left grasping at straws to find ways of managing the condition. Because there are no treatments, many patients are literally left to die. (Information from Global Genes RARE Disease Facts page)
These are some of the reasons we have World Rare Disease Day.
My neck pain and headaches have been getting worse lately, and I noticed that they are significantly worse when I am upright for longer periods of time. I also started getting headaches that are either (or possibly both) occipital neuralgia or trigeminal neuralgia. After some research, I discovered that sometimes these symptoms can be due to craniocervical instability (CCI) which is common in people with connective tissue disorders. To see if CCI is causing any problems, they use an upright MRI.
I talked to my neurologist about it, and he agreed an upright MRI could show us something that my supine (flat on my back) MRI had not. He found a place nearby that did them, and filled out the orders for me.
Image of my upright MRI. This view is as if you were staring at my left ear (you can see my chin pointing towards the left of this image).
“Self-care” has really been a buzz word lately, hasn’t it? But, that’s for good reason, taking care of yourself really isn’t a luxury so much as it is a necessity. If you are at your wits end and have gotten to the point where you have started to “lose yourself” (you know, that moment when you say “wait, who am I anymore?!”) then you just can’t effectively serve/help/interact with the people around you!
Self-care can be as simple as locking the door when you shower so you won’t be interrupted, taking 15 minutes in the morning to enjoy your favorite beverage, or spending 5 minutes playing your favorite game on your phone while you wait for something to happen (like waiting for the kitchen timer to go off). It can also be extremely elaborate, like an entire spa day or going on a vacation (or daycation) by yourself!
These DIY aromatherapy bath bombs are somewhere in between the simple self-care and elaborate self-care. They feel extremely indulgent to use, but they only need about 20 minutes to assemble several of them and about a 20 minute bath to utilize them (though, I’ve found my baths last a tad longer when they feel this luxurious 😉 so, whatever you have time for). Continue reading
In the middle of December, my immune system decided to crash. It did this once, several years ago. The major difference is that back then, we had an obvious trigger, and this time it just happened. It’s now the last half of February, and I’ve been sick more than I’ve been okay. Tho, I was just healthy for two weeks prior to my current issue.
I write a bit more about it here: Rough Start to 2018
I am not using names for legal protection. While I want to scream this doctor’s name from the rooftops and tell everyone in the world to never ever go see this jerk, I know that if he finds it I could get sued for libel. Instead, I am writing this to educate and warn people that doctors like this exist, and as a form of therapy for myself to help me process this awful appointment.
I am also not using names in case this does end up in a legal case. During legal investigations and such, you’re not allowed to talk about the case, so I don’t want to cause any conflicts by having it published. Well, obviously my husband’s name appears in there because he was in the appointment and he is already not anonymous on this blog. Continue reading
I’ve known Izzy and her mother for a long time now. I first met them when I was working retail, her mother (Elly) was my manager. We quickly became really good friends. Periodically, Elly’s daughters would come visit (Izzy and AW) at the store, so I had met them several times. I babysat a few times, because Izzy was only about 7 and AW was only about 4 years older. Then, when Izzy was 9, they asked me to be a nanny. I nannied her for about year before my wedding. We spent a ton of time together, and it was fun watching her grow up.
We lost touch for a bit (well, we followed each other on social media, but hadn’t talked in person in a long time) due to a series of moves which included her moving out of state.
Then, at the beginning of this month, we got a chance to have lunch (Dan and I met up with Elly and Izzy, AW was still out of state). I found out that Izzy had been struggling with atrocious migraines that would last for a week or longer and had been severely impacting school, and had required several ER visits. Since Elly was having a hard time taking all the time off to take her to all the doctors and ER trips, I offered to help (since I work for myself).
I’m currently working on a different post that will be a little more fun, but it’s taking quite some time. I’ve been having an extremely rough start to this year, and it’s showing in literally everything I try to do. I’ve even started to appear sick, which is worrisome because normally I don’t look sick or tired (except facial expressions) on a regular basis – but now there are dark circles forming under my eyes, and my eyelids are always a little too pink and puffy.
It’s easiest to post on Instagram regularly, since I don’t need a computer and computers can cause me migraines. I would recommend following me on Instagram to get updates the fastest: findinglifessilversun on Instagram.