Happy Holidays from The Bulfers!

I hope you were all able to find some joy in this holiday season in whatever circumstances you found yourself in – I know the holidays can be very difficult for some people.

Personally, I extremely overdid it and my body crashed hard on Christmas day. Thankfully, our Christmas day is very relaxed and so I kept from overdoing it even more. Unfortunately, on the 26th, I woke up in extreme pain because I had managed to dislocate my L5 vertebra and my sacrum (again). My vertebrae dislocate rotationally, meaning they rotate like they’re supposed to, but get stuck rotated and won’t go back into place properly without manual manipulation. I was at a “chronic illness ten” meaning that I would have gone to the ER had I not known exactly what it was and instead just kept doing what little I could to keep my brain distracted. Experiencing “chronic illness ten” pain is frustrating, because unless someone knows you extremely well they have no idea how badly you are truly suffering.

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Long Awaited Genetics Appointment Results!

I made an appointment to see the only adult geneticist in the state of Colorado over one year ago. (Read more: here.) It was actually fourteen months ago. The appointment was because I wanted to know for sure if I had something more specific than the joint hypermobility syndrome my rheumatologist diagnosed me with (as a working diagnosis).

So I waited… and my appointment was just on Monday! I’m extremely excited about it, and it was one of the best appointments I’ve ever had.

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