Trigger/Content Warning:
Body Image, Weight, Food, Gastrointestinal Disorder
Dear Body,
I try so hard to love you. It hasn’t always been this way, but I’ve been trying and trying and trying.
Continue readingTrigger/Content Warning:
Body Image, Weight, Food, Gastrointestinal Disorder
I try so hard to love you. It hasn’t always been this way, but I’ve been trying and trying and trying.
Continue readingThe reason I decided to combine weeks 3 and 4 is because I didn’t log much during week 4. I go a bit more into detail as to the reason why not in “The Case of the Missing Lizz;” but to summarize: I’ve started getting tension migraines. I had one tension migraine from the afternoon of Wednesday the 19th until I went to sleep Friday the 22nd. It was still hanging around in a milder form on Saturday. Since that first one, I have had one every single afternoon/evening until I go to sleep that night. It’s been pretty miserable and I’ve been forgetting to log because of that.
I still had the flu during week 3, so most of my log pages are full of medications. Luckily, I had mostly recovered before the week was out. Though, I did come down with oral thrush thanks to the strong antibiotics I was put on for my thumb infection. (More in Missing Lizz post.)
Chicken Noodle Soup
I went to my PCP and got diagnosed with oral thrush
Beef-N-Noodles
Burritos
I stopped logging my fluids, it was tedious. I figured that I have plenty of data to get an average, and as long as my body is hydrated then I’m doing alright.
From my Instagram; In ER for tension migraine
I had a terrible tension migraine all day, so I only logged that I ate breakfast at 7:30am and it was oatmeal with brown sugar.
I ended up in the emergency room for the tension migraine at about 8:30pm, which is how I found out what was actually going on.
Still had a horrid tension migraine, and it was all I could do to keep myself alive (with food and medications and lying on the couch wanting to be able to temporarily remove my head).
My headache was about 99% gone, but I didn’t want to be too stringent with things. I took today as a self-care day to make sure my headache wouldn’t come back!
Steak and Mashed Sweet Potato
Before the end of week four, I emailed Kara (the dietitian) with a huge list of questions and concerns. Because of everything that I have had to be dealing with, Kara decided to make some changes to my diet. I will discuss these changes in a separate post, as this post has gone on quite long enough already!
As always, let me know what recipes you would like to see!
Other LEAP Diet Posts:
I started my LEAP diet on March 28th. I am starting with a ½ phase due to my daily headaches; since sudden food detox can cause headaches in someone without chronic headache, my dietitian didn’t want me to feel atrocious. However, I’ve still been having some issues with phase ½, but it could also be due to my poor health. (This post has details about the diet.)
Right before starting the diet, I ended up with a pretty nasty virus and a sinus infection (see this post for details about being sick while chronically ill). I also got an infected hangnail (common for me) on my thumb that just wouldn’t heal, so I ended up on oral antibiotics. Then, since I went to urgent care for my thumb infection, I picked up another virus. When I went back to urgent care (Dan had to call them to make sure they had all the tools I needed, because he thought I looked like death), it was confirmed that I had picked up influenza B. First virus and sinus infection were confirmed March 23, thumb infection urgent care visit was April 6, started showing signs that I had a different infection April 7, and an urgent care visit confirmed the flu April 9. It’s been a really rough several weeks. Continue reading
I started my LEAP diet March 28th, with my ½ phase. Unfortunately, I’ve also been struggling with some severe acute illnesses as well, so it’s been hard to tell how much the diet is changing things. I was feeling a bit better for a few days, but then I seem to have relapsed and gotten really sick. Hopefully, I’ll get over whatever this is soon, and then we can see what the diet is doing!
Since everyone seemed to enjoy my weekly FODMAP diet lists, I thought I would do the same thing for the LEAP diet! Since I’m so extremely restricted on what I can eat, I have to get creative with food. There has been a lot of “from scratch” cooking, a lot of substitutions, and a lot of frustration. I’ve lost several pounds, because I’m still working on trying to figure out snacks and other quick food, so I’m not eating as much as I should be. Hopefully, I’ll get more energy soon and can actually spend more time cooking.
Week one of phase ½, I was cooking the entire week. Every second of my free time was spent in the kitchen, which would be fine if it didn’t require so much energy. I’m completely exhausted, but hopefully I can get a better routine down. Continue reading
My LEAP/MRT follow-up with the dietitian is on the 21st, so just 7 days now! While I’m really nervous about what I will be able to eat, I’m very excited because I think this will really help!
For an overview of LEAP/MRT, and why we are going that route, be sure to check out my More Dietitian Changes post!
Dan and I have definitely noticed that there are a few meals that make me feel quite ill, so we decided it would be fun to make some guesses. There are also foods that cause significant oral symptoms (itching, tongue rash, etc) and that seem to trigger my eosinophilic esophagitis (E0E). Obviously, Dan was only able to make his guesses based on the times I’ve told him something seems off. These guesses are just for if we think the foods will be “not green” (either yellow or red), not the degree to which they will be no good. Continue reading
The dietitian has changed things again! I saw Kara on February 6th to follow-up on the low FODMAP diet. As I mentioned in my last low FODMAP roundup, the diet really didn’t seem to be doing anything for my symptoms. Since it wasn’t helping at all, she took me off the diet completely! Of course, I’m still eating sort of low FODMAP since I still have so many groceries… but I’ve been able to eat some of my favorite foods that were taken away from me (burritos is a big one).
Obviously, we have just changed what we’re going to do. For now, I’m on a free diet (I can eat anything I want), but it won’t be staying that way at all. Nope. We have moved forward with the LEAP/MRT protocol. LEAP = lifestyle eating and performance, and MRT = mediator release test. I got my blood drawn for the testing February 10th, and it’ll take a little bit for the results to come back.
Image: The Times, UK (credited in the article to Getty Images)
This was likely my last full week on the low FODMAP diet, as I see Kara (the dietitian) again on Tuesday, February 7th. I had forgotten to log the days I felt bloating and other symptoms like that, but they haven’t decreased at all on this diet. Most days, I am still extremely bloated in the evening. This entire last week, I felt incredibly overfull and was having to force myself to eat on my meal schedule (every 2-3 hours). I’ve been having a lot of nausea, and have taken at least one Zofran every day. To top it all off, my eosinophilic esophagitis is acting up, but I think that’s due to the new nasal spray the immunologist gave me (if it continues for another week, I’ll be emailing them to let them know I’ll be discontinuing it).
I’m really not feeling any better on this diet, my symptoms haven’t improved, and I’m fatigued/overwhelmed by the restrictions and inability to eat out and need to carry a cooler with me everywhere I go. I’m almost positive, now, that my GI was right and that my symptoms are being caused by eosinophilic enteritis… or that they’re at least food allergy/sensitivity related. (No, I am not gluten sensitive. I have been tested several times, and every time I eliminate gluten I get sicker.)
Sorry to those of you that have been following my FODMAP journey, these last two weeks have been absolutely ridiculous.
Week 3 has very few entries, which is why I’m combining it with Week 4 for this post. Dan, my husband, went on a business trip the 18th through 21st. He travels occasionally for work (he gets to go to launch sites to help launch rockets), and this was his first trip of the year. It was the first time he’d had to travel while I have been on the new eating schedule, and it didn’t go well for me – turns out I need to use far too much energy making food to actually do much else when I’m left to take care of the cats and myself for 4 days. On top of the business trip, I also had my follow-up appointment with Dr H (the physiatrist) to go over my MRI results on the 19th, and that didn’t go well (you can see the results here); It took a serious toll on my mental health. Because of everything, I decided to just skip the logging the 18th through 22nd to take care of my mental and physical health.
(LF = lactose free; GF = gluten free)
Kale Banana Smoothie
I did make sure that even though I wasn’t logging, I was following my diet and the timing of my eating schedule. I was also ensuring I was drinking my average amount of fluids every day. I just had no energy to write anything down.
Week 4 was also interesting. I had my important immunology appointment on Monday, at National Jewish Health (write up coming soon) which took a bit longer than expected. Then on Friday, I got my cortisone shot in my right SI joint. For the cortisone shot, I had to be NPO (no idea what it stands for, but it means nothing by mouth at all, not even water) for at least 4 hours before the procedure. Since my stomach doesn’t always like to empty properly, even though I don’t have gastroparesis, I wanted to be sure I gave myself at least 5 hours. My shot wasn’t until 1:30pm, so that meant I wanted to eat by 8am. I decided to wake up at 6am (to ensure I had enough time to prepare food and get back to sleep) and eat breakfast, then I went back to sleep as long as I could, then went to my shot. I wasn’t able to eat until I got home (I did bring food, but I was sleepy and nauseous) at 4pm. Otherwise, the week was pretty smooth.
*I had to modify the sandwich from Yardhouse: lettuce wrapped, no mayonnaise; the chicken was seasoned only with salt and pepper (we called ahead) and the fries are just potatoes cooked in plain canola oil with no seasoning
So far, the diet doesn’t actually seem to be helping much. I’m still going to bed quite bloated, but some nights are far worse than others. I’m almost positive that the bloating and digestive problems I have are due to food allergies, and I’m still eating trigger foods. However, I have noticed I do feel a bit better when I drink the LF milk as opposed to regular milk (thinking about it, I was a bit sluggish feeling after drinking normal milk) so I may stick with that anyway.
There will be one more FODMAP week before I see Kara (the dietitian) again. I’ll probably get put on another diet, or a modified diet of some sort anyway, so I will likely continue these roundups. I will work on getting more recipes posted, regardless of what comes from my follow-up!
Other Posts About My FODMAP Diet:
Week two of my low FODMAP diet (and the other changes) has gone interestingly… to say the least.
I started having severe abdominal pains and crippling nausea on Monday, the ninth. The nausea actually started on Sunday, the eighth, but wasn’t as severe as it became on Monday. Continue reading
Dan suggested that I do a “weekly roundup” of my FODMAP diet, and I loved the idea! Since I’m keeping a food log anyway, it’s really not that much more work on my part. For this first month of the diet, at least, I’ll be doing weekly updates on how my diet is going, and include what I’ve been eating that week. I will also occasionally post recipes for the meals I’m making so that you can make them too. Of course, the recipes will probably take much longer to get posted, so if you want to see a specific recipe sooner rather than later, comment on that week’s roundup and I’ll move it up the to-do list. (Weeks will run from Saturday through Friday, that way I can post it for you to read over the weekend! Sorry this first one is late, it took me a little while to figure out how exactly to format this.)
Image: Organics.org
Now, without further ado, the diet for Week 1! Continue reading