Today is the first day in a VERY long time that I haven’t had a migraine by this time (5pm). I have been suffering from nearly daily migraines for weeks, and denying it. Denying it with excuses: “I’m on my period, I’ve always gotten them every day of my period week” (pretty much true), “my allergies are just really bad, so it must be a crazy sinus headache” (obviously, I like lying to myself as well as Dan), “I’m tired,” “I have eyestrain,” “I can cope,” etc. However, after my back seized up and my pain went out of control, I couldn’t deny them anymore. I finally called Dr K (the neurologist that had given me the medication that is supposed to be stopping my headaches and controlling my pain) and left a message with his medical assistant. Hopefully, I’ll hear back and either be able to get in with another appointment or be told to raise the dosage and the headaches will stop. I forgot to mention the side effects on the message though, ugh. I didn’t realize that until I was typing this out.
Mom is leaving to head back to CA tomorrow… actually, today… in, like, 5 1/2 hours. And I’m not sleeping. Oops. I told her I’d make her some maps. So what do I do? Decide I can’t stand the new way that Google prints maps anymore, so I decide to make my own. Now, they turned out really well. But I’m dumb, “Yes, I feel ill… so let’s spend three plus hours making maps from screen shots and typed directions.” Oh well, she shouldn’t get lost at least Though I suppose their could be random construction detours that weren’t marked… you never know on road trips.
Like I’d mentioned on “Busy Bee,” Dan and I own our own townhouse!
It’s fantastic having a place to come home to and realizing that you own it 🙂 Every time I think about it, and really let it sink in, I’m just in awe. I realize that my life can be really crappy sometimes, thanks to all the stupid stuff going on in my body, but fully realizing that I own a house reminds me that my life is also pretty amazing!
So, POTS… yeah, it pretty much sucks. This one is my newest chronic invisible illness, and has been the most debilitating by far. Postural orthostatic tachycardia syndrome is a complicated beast. POTS is a type of dysautonomia, which is a malfunction of the autonomic nervous system (the part of your nervous system that controls everything involuntary, like blinking, breathing, heart rate, blood pressure, etc). As you can imagine, the autonomic nervous system malfunctioning is not a good thing. Now, let’s explain the rest of this POTS thing the best that I can.
So, in the first part I covered the illnesses that I was diagnosed with (or knowingly suffered from) before I turned 18. After graduating high school in California, I moved to Colorado to begin college (August 2008). It didn’t take long for my health to get all out of whack. I ended up having ovarian cyst issues in March 2009, which ultimately ended with surgery in June 2009 to remove a large and stubborn cyst. Thankfully, the cyst problem doesn’t appear to be chronic. However, I ended up getting diagnosed with several other invisible illnesses, which are explained below in rough order of diagnosis. From oldest to most recent, this post will cover: migraines, plantar fasciitis, and fibromyalgia.
I suffer from several invisible, chronic illnesses: asthma, allergies, irritable bowel syndrome, attention deficit hyperactivity disorder, depression, most likely misophonia, insomnia, migraines, plantar fasciitis, fibromyalgia, temporal mandibular joint dysfunction, eosinophilic esophagitis, lactose intolerance/sensitivity, and postural orthostatic tachycardia syndrome. The purpose of this post series is to explain these conditions further and when I was diagnosed. I, unfortunately, have so many conditions that this would be far too long for a single post, so I’ll be talking about them in the rough order of diagnosis (or onset if it was obvious enough to determine the exact start). If you want to know more about me as a person, please read my About Me section.
This post will cover: asthma, allergies, irritable bowel syndrome, attention deficit hyperactivity disorder, depression, most likely misophonia, and insomnia.