Hey everyone, Lizz here! I had surgery on my elbow yesterday (March 27th), and knew I would likely be incapacitated for a while. However, I know a bunch of you wanted to know what was going on as soon as possible – especially since we weren’t sure which surgery I would receive. To easily update everyone, I am having Dan write this post (I’m writing this blurb in advance)! I will write my own update as soon as I am able. There may be a few non-updates that come out in the meantime, as I have a few drafts that Dan just has to hit “publish” on. Be sure to keep an eye on my Instagram, as I’m more likely to be able to update that before I can update here.
Without further ado, here’s Dan’s update:
Post-Surgery Update – Dan’s Perspective
As Lizz indicated in her intro, yesterday was her surgery day. Since her arm pain began, over two years ago, it’s been quite a journey trying to figure out the cause. There was definitely a little tension built up from having to deal with that and the looming surgery so I’m happy it’s finally done. Here’s how it went.
I hope you were all able to find some joy in this holiday season in whatever circumstances you found yourself in – I know the holidays can be very difficult for some people.
Personally, I extremely overdid it and my body crashed hard on Christmas day. Thankfully, our Christmas day is very relaxed and so I kept from overdoing it even more. Unfortunately, on the 26th, I woke up in extreme pain because I had managed to dislocate my L5 vertebra and my sacrum (again). My vertebrae dislocate rotationally, meaning they rotate like they’re supposed to, but get stuck rotated and won’t go back into place properly without manual manipulation. I was at a “chronic illness ten” meaning that I would have gone to the ER had I not known exactly what it was and instead just kept doing what little I could to keep my brain distracted. Experiencing “chronic illness ten” pain is frustrating, because unless someone knows you extremely well they have no idea how badly you are truly suffering.
I made an appointment to see the only adult geneticist in the state of Colorado over one year ago. (Read more: here.) It was actually fourteen months ago. The appointment was because I wanted to know for sure if I had something more specific than the joint hypermobility syndrome my rheumatologist diagnosed me with (as a working diagnosis).
So I waited… and my appointment was just on Monday! I’m extremely excited about it, and it was one of the best appointments I’ve ever had.