My first 2019 review got longer than anticipated, so I divided the year in half. Be sure to check out the first half of 2019 in this post.
Both summaries include links to my Instagram posts (where I’ve remained active) for further details, when they’re available. A few items, especially in part one, also include links to blog posts. All links below are to my own material.
Now, without further ado, let’s get to the summary! This post starts with July 2019:
April 2019 was the last time I was consistent on my blog, and a lot has happened since then. I got burned out and overwhelmed, so I needed to take a break from blogging. My life has continued to burn me out and overwhelm me, but from a blogging perspective I’m feeling more like myself again!
To help catch everyone up on life’s happenings, I wanted to do a summary of 2019. No matter how “quick” I try to make these, they always end up long. This post will be January through June, and part two will be up next week. These summaries will include links to my Instagram posts (where I’ve remained active) for further details, when they’re available. A few items, especially earlier in 2019, will also include links to blog posts. All links in this article are to my own material.
Twenty-eight years and nine months without a broken bone. But, I can no longer say that “I’ve never broken a bone.”
What happened? Well, if you’re following my Instagram, you have a vague idea of what’s been going on. But, I’ll tell the whole story here.
The week before Thanksgiving week, Thanksgiving week, and the first weekend of December were extremely busy. (USA’s Thanksgiving was November 22, 2018.) And that’s when the entire story starts.
It’s been just over four weeks since my elbow surgery. The surgery will hopefully correct pain and numbness that I’ve had in my right arm for over two years due to cubital tunnel syndrome. You can learn more details about why I had the surgery here, and read the immediate post-op update here.
As Dan had said, the surgery went well. I made sure to request they not use Versed during anesthesia (we learned I reacted poorly to it after my SI joint injections), and waking up was a lot easier without it! I was nowhere near as nauseous as I have been after every other surgery. They still gave me IV Zofran right after I woke up though – I was a tad nauseous and nerve pain can always make that worse. I was dealing with pain (and somehow able to give it a number while barely conscious), and they gave me several (3) doses of IV fentanyl before releasing me. (I just looked at Dan’s post-op update, and they also gave me a Dilaudid apparently.) Below is a slideshow of pictures from my surgery day!
*sings and dances*
I’m broken and I have proof, I’m broken and I have proof!
Before I get to the good news, let me back up a little. Earlier this year, I went to an immunologist my ENT/allergist had recommended I see. It was the worst appointment I have ever seen and because of it I terminated my relationship with my ENT/allergist and decided to seek care elsewhere. You can read more about my appointment from Hell: here.
After that awful appointment, I went to my rheumatologist. Some of what the horrible immunologist had said about my conditions really shook me, so I wanted to double check on my fibromyalgia diagnosis and get a little more clarity as to why I had received the diagnosis exactly. I also wanted to get a recommendation from him as he is an amazing and brilliant doctor and has given me many excellent recommendations in the past.
I set up an appointment with the new immunologist for February 26th. That first appointment was amazing: an hour and a half of him truly listening to every single thing I said as we went through my history system by system, asking me in detail about many of my parents’ health conditions, him formulating hypotheses out loud about what may be going on and what may be connected to what, and then figuring out testing to run. He requested records from several doctors to make sure they hadn’t missed anything in their tests, and he ordered a bunch of lab work. Continue reading
Hey everyone, Lizz here! I had surgery on my elbow yesterday (March 27th), and knew I would likely be incapacitated for a while. However, I know a bunch of you wanted to know what was going on as soon as possible – especially since we weren’t sure which surgery I would receive. To easily update everyone, I am having Dan write this post (I’m writing this blurb in advance)! I will write my own update as soon as I am able. There may be a few non-updates that come out in the meantime, as I have a few drafts that Dan just has to hit “publish” on. Be sure to keep an eye on my Instagram, as I’m more likely to be able to update that before I can update here.
Without further ado, here’s Dan’s update:
Post-Surgery Update – Dan’s Perspective
As Lizz indicated in her intro, yesterday was her surgery day. Since her arm pain began, over two years ago, it’s been quite a journey trying to figure out the cause. There was definitely a little tension built up from having to deal with that and the looming surgery so I’m happy it’s finally done. Here’s how it went.
For the past two years, I have had rather severe nerve pain in my right arm. I haven’t talked about it a whole lot because we had no idea why it was happening or what we could do about it, so I just tried my best to keep going despite it. The past six months, however, the pain has gotten to a point where I just cannot ignore it any longer.
I am right hand dominate, so not using my right arm just isn’t an option for me. These past six months, I have had to give up writing anything by hand past a few sentences, change how I use my phone, modify my typing, and change a lot of my habits with how I move around during the day.
Respiratory infections, sinus infections, ear infections – oh my!
Gastrointestinal infections, viral infections, bacterial infections – oh, die…
Currently, I’m extremely ill. I have some sort of awful infection in my head and GI system. I’ll spare you all of the TMI details, but let’s just say I’m a giant ball of disgusting. Lots of phlegm is involved, nausea, and too many trips to the restroom. There’s also severe full body aches and bone crushing fatigue. It’s not pretty.
It got me thinking, what are some must-haves for surviving a nasty infection like this? Here are my product recommendations (and why I recommend them) for surviving an infection while dealing with chronic illnesses. Continue reading
My neck pain and headaches have been getting worse lately, and I noticed that they are significantly worse when I am upright for longer periods of time. I also started getting headaches that are either (or possibly both) occipital neuralgia or trigeminal neuralgia. After some research, I discovered that sometimes these symptoms can be due to craniocervical instability (CCI) which is common in people with connective tissue disorders. To see if CCI is causing any problems, they use an upright MRI.
I talked to my neurologist about it, and he agreed an upright MRI could show us something that my supine (flat on my back) MRI had not. He found a place nearby that did them, and filled out the orders for me.
Image of my upright MRI. This view is as if you were staring at my left ear (you can see my chin pointing towards the left of this image).
In the middle of December, my immune system decided to crash. It did this once, several years ago. The major difference is that back then, we had an obvious trigger, and this time it just happened. It’s now the last half of February, and I’ve been sick more than I’ve been okay. Tho, I was just healthy for two weeks prior to my current issue.
I write a bit more about it here: Rough Start to 2018