Fibromyalgia. It’s different for everyone that has it, but one thing remains constant: no one likes having it. Most people with fibromyalgia agree that it storms into your life like a hurricane, knocks you flat on your back, and takes up residence in your life like an uninvited house guest that just doesn’t take a hint!
Since everyone is so different, I will try my best to touch on the main symptoms that I see almost everyone suffering from, but my main focus is simply on my personal experience with fibromyalgia and what I have done to ease the symptoms I have. Continue reading
For me, summer equals significantly more physical activity. I’m sure most people that live in an area that experiences winter will agree: when the weather is “nice” we do as much as possible to try to make up for being inside all winter. When you are chronically ill, however, more physical activity can also equal significantly more pain.
My fibromyalgia is the main cause of my pain in the winter, but I experience different pain in the summer. I haven’t been able to figure out how big a role each of my conditions plays into the summer pain, but I have developed a few tricks for dealing with it. My summer pain is extreme muscular fatigue, joint pain, and an all over bruised sensation; I do experience nerve pain, but it’s usually do to a pinched nerve thanks to my joint problems instead of due to my fibromyalgia. I also have to juggle my dysautonomia which includes a lot of problems with temperature regulation (leading to overheating) and swelling. Continue reading
I made an appointment to see the only adult geneticist in the state of Colorado over one year ago. (Read more: here.) It was actually fourteen months ago. The appointment was because I wanted to know for sure if I had something more specific than the joint hypermobility syndrome my rheumatologist diagnosed me with (as a working diagnosis).
So I waited… and my appointment was just on Monday! I’m extremely excited about it, and it was one of the best appointments I’ve ever had.