Allergies: The End of the Road

I’ve hit the end of the road with my allergies, apparently. I went to my ENT/allergist on June 2nd, to follow-up about what the specialist immunologist/allergist had to say. Sadly, the super specialist just wanted to focus on my eosinophilic esophagitis (EoE) and didn’t care about the reason I was actually there: I would massively overreact to every allergy shot I got at doses most people don’t ever react to (even anaphylactic people). Even though they want me to come back, I will not be returning to the super-specialist because my EoE is being managed by my gastroenterologist and my ENT/allergist is more concerned with my allergies than them. Continue reading

Low Batteries: Why I Have No Energy

If you haven’t done so already, please check out part 2 of my “Dan as my Husband and Caretaker” series and leave any questions in the comments! I want to interview him, to get a different perspective on our relationship, but I can’t do that without your questions! (He won’t just write something, I’ve asked him to before.) I want the questions primarily geared towards Dan, but please feel free to ask anything at all! We will do our best to answer all of your questions! (If the post won’t let you comment, please head to my Contact page and send me an email. Subject: Questions for Caretaker Interview.)



I haven’t done a lot of blogging lately, and it’s due to how low my energy levels have been.

Since January 1, 2017 (the last six months), I have had 74 medical related appointments. These appointments include doctor visits, testing (not counting some unscheduled blood draws), therapy visits, and medical related classes. I also had two urgent care visits and an emergency room visit, all of which are outlined in The Case of the Missing Lizz. I have also done two different, intense, diets for my chronic health problems (including my GI problems): the low FODMAP diet, which was not successful, and now I’m doing the LEAP diet. All of the medical stuff has, understandably, drained significant portions of my energy.

The LEAP diet has played a major role in my energy problems, sadly. Continue reading

When And How Dan Became My Caretaker

Someone on my Instagram recently said “I’d love to hear about you and Dan’s relationship with him as your caretaker” (see comment on this post), which made me realize that I really don’t talk about that much. I think it’s difficult for me to talk about, simply because it feels natural to me. However, I will try to explain things the best I can. Continue reading

LEAP Diet: Changes to Phase 1

When we first setup phases ½ and 1 of my LEAP diet (see this post), I was told to email Kara (dietitian) near the end of my ½ phase so she would know my progress. Unfortunately, with everything that has been going on with my health, the email was really long and not very happy. Because of everything going on, and my mental health struggles during this time, Kara decided that instead of doing the even stricter phase 1, we would liberalize my diet. Now, I can have all of my green foods and chemicals. I have to stick to tested ingredients only (with one exception), and I did go through the list and make sure I removed foods that were naturally high in the yellow and red chemicals.

The one exception to “tested ingredients only” is that Kara has allowed me to have Trader Joe’s Rice Milk. The ingredients list is exceptionally short and boring; it’s mostly just rice, salt, water, and some added vitamins. I already knew I loved their rice milk, and I was struggling without having a milk. (My homemade rice milk was disgusting.)

Some general rules for my “liberalized” diet:

  • I cannot have any frozen or dried fruits or vegetables. Really, I can’t have processed fruits or vegetables because they usually contain sodium metabisulfite, which is my only red chemical.
  • To avoid sulfites in general, I need to avoid: sulfur dioxide, potassium bisulfite and metabisulfite, sodium bisulfite and sulfite and metabisulfite.
  • To avoid polysorbate 80, I need to avoid: sorbitan monooleate, polysorbate 60, sorbitol, and sorbitan derivatives
  • FD&C Red #3 is another additive I need to avoid, and it also goes by the name erythrosine.
  • All of my dairy products have to be grass-fed. Cheddar cheese must be aged less than 6 months to avoid high tyramine.
  • If I decide to have oranges, they must be pulp free. That pretty much means I need 100% pulp free orange juice only, or I can use orange essential oil!
  • I will still be limiting soy products, as there is research that shows soy may not actually be good for you after all. (It can mess with hormones, and my hormones don’t need any more messing with!)
  • I should try to limit parsley and dill because parsley is high in nitrate and dill is “medium” in nitrate.
  • I can have sea salt, cane sugar, and baking soda.

What Can I Eat?

Proteins
  • Chicken
  • Codfish
  • Crab (not a big fan)
  • Pork (not a big fan)
  • Beef
  • Eggs
  • Pinto Beans
  • Sole (unsure if I’ve ever had it)
  • Catfish (unsure if I’ve ever had it)
  • Tilapia (unsure if I’ve ever had it)
  • Clam (only like in N.E. clam chowder)
  • Garbanzo Beans
  • Turkey
  • Tuna
  • Scallop (never had)
  • Salmon
  • Lamb (yuck!)
Starches
  • Sweet Potato
  • Kamut (unsure if ever had)
  • Quinoa
  • Rice
  • White Potato
  • Amaranth (grain) (unsure if ever had)
  • Buckwheat
  • Oat
  • Tapioca
  • Spelt
Vegetables
  • Broccoli
  • String Beans (yuck!)
  • Cucumber
  • Peas (only eat in things, never alone)
  • Zucchini (not a huge fan but it’s in my chicken broth)
  • Onion
  • Yellow Squash (yuck)
  • Mushrooms
  • Green Pepper
  • Cauliflower
Fruits
  • Pineapple
  • Honeydew Melon
  • Watermelon
  • Peach
  • Plum
  • Cherry
  • Blueberry
  • Cranberry
  • Orange (no pulp)
  • Strawberries
  • Apple
  • Apricot
  • Pear
  • Mango (no idea how to prepare)
  • Papaya (no idea how to prepare)
Dairy/Miscellaneous
  • Cocoa
  • Cheddar Cheese (aged less than 6 months)
  • Goat’s Milk (not a big fan)
  • Yogurt
  • Cottage Cheese (yuck! hate the texture)
  • American Cheese
  • Whey
Nuts/Seeds/Oils
  • Sesame
  • Olive
  • Sunflower Seed
  • Soybean
Flavor Enhancers
  • Vanilla
  • Cinnamon
  • Oregano
  • Lemon
  • Cane Sugar
  • Cayenne Pepper (don’t ever cook with this)
  • Carob
  • Basil
  • Honey (need to limit due to pollen issues)
  • Mustard Seed (not a huge fan)
  • Leek
  • Black Pepper
  • Cumin
  • Garlic
  • Mint
  • Maple
  • Coconut (need to not go too overboard because it’s very close to yellow)

Since my diet has been opened up a bit more, I won’t be doing the weekly roundups anymore. Instead, I’ll just post recipes (including those you have requested) that have worked out well for me. These won’t be on a regular schedule, because it depends on when things work out and when I can get pictures of them so I can write the posts.

Feel free to take a look back through my other LEAP diet posts and request any recipes you would like to see! I have a request for the tortillas (which I will probably get posted this week) and one for the sweet potato risotto (which will probably be posted sometime near the end of this week or early next week). Here are all my past LEAP diet posts:

If you have any good recipes using these things, please let me know below!

LEAP/MRT Diet Phase ½, Weeks 3-4

The reason I decided to combine weeks 3 and 4 is because I didn’t log much during week 4. I go a bit more into detail as to the reason why not in “The Case of the Missing Lizz;” but to summarize: I’ve started getting tension migraines. I had one tension migraine from the afternoon of Wednesday the 19th until I went to sleep Friday the 22nd. It was still hanging around in a milder form on Saturday. Since that first one, I have had one every single afternoon/evening until I go to sleep that night. It’s been pretty miserable and I’ve been forgetting to log because of that.

I still had the flu during week 3, so most of my log pages are full of medications. Luckily, I had mostly recovered before the week was out. Though, I did come down with oral thrush thanks to the strong antibiotics I was put on for my thumb infection. (More in Missing Lizz post.)



LEAP Diet Phase ½, Week 3: April 11 – 17

Tuesday, April 11
  • 11:30am: oatmeal with brown sugar
  • 2:15pm: rice cake with sunbutter (sunflower seed butter)
  • 6:30pm: chicken noodle soup; steamed broccoli
  • 9:30pm: edible cookie dough #2
  • Fluids: 122oz (3.61L)
chicken noodle soup signed

Chicken Noodle Soup

Wednesday, April 12
  • 11:30am: oatmeal with brown sugar
  • 2pm: rice cake with sunbutter
  • 6:30pm: taco bowls (homemade refried beans, brown rice, ground beef, mild cheddar)
  • 9pm: Siggi’s with blueberries (only a few bites thanks to being sick)
  • Fluids: 89oz (2.63L)
Thursday, April 13

I went to my PCP and got diagnosed with oral thrush

  • 12pm: blueberry muffins
  • 1:54pm: slice of cheddar cheese
  • 4pm: plain rice cake
  • 8pm: homemade tortilla chips; taco bowl
  • Fluids: 77oz (2.28L)
Friday, April 14
  • 11:45am: spoonful of sunbutter; some uncooked oats (2 handfuls)
  • 3:30pm: chicken noodle soup
  • 8pm: chicken with oregano, garlic, salt; steamed broccoli; sweet potato fries (fail)
  • 9pm: taco bowl
  • 10:45pm: edible cookie dough #2
  • Fluids: 89oz (2.63L)
Saturday, April 15
  • 11am: oatmeal with brown sugar
  • 2:30pm: chicken (canned chunk chicken, cumin, salt); pinto beans; cheddar cheese
  • 7pm: noodles (rice and quinoa noodles from Trader Joe’s); steamed broccoli; steamed sweet potato
  • Fluids: I completely lost track of my fluids by the end of the day
Sunday, April 16
  • 12pm: oatmeal with maple syrup and blueberries
  • 2:45pm: rice cake with sunbutter
  • 6pm: beef-n-noodles (Mom’s version of beef burgundy, very diff, but modified for my diet; served over the rice and quinoa noodles)
  • 8pm: cheese
  • 9:30pm: edible cookie dough #2
  • Fluids: 66oz (1.95L)
beef n noodles signed

Beef-N-Noodles

Monday, April 17
  • 9am: oatmeal with brown sugar
  • 12:30pm: beef-n-noodles
  • 6pm: plain rice cake
  • 7pm: chicken (garlic, oregano, salt); mashed cauliflower (coconut cream and oil, pepper, salt, garlic)
  • 8:40pm: cheddar cheese
  • Fluids: 76oz (2.25L) (I may not have recorded everything)

LEAP Diet Phase ½, Week 4: April 18 – 24

Tuesday, April 18
  • 9:45am: oatmeal with brown sugar
  • 12:30pm: rice cake with sunbutter
  • 4:30pm: homemade tortilla chips
  • 6:45pm: burritos (refried beans, ground beef, oat/rice tortillas, cheddar cheese)
  • 8:45pm: edible cookie dough #2
  • Fluids: 87.28oz (2.58L)
burritos soft tortillas signed

Burritos

Wednesday, April 19

I stopped logging my fluids, it was tedious. I figured that I have plenty of data to get an average, and as long as my body is hydrated then I’m doing alright.

  • 11:45am: oatmeal with brown sugar
  • 3:30pm: rice cake with sunbutter
  • 7:30pm: beef-n-noodles
Thursday, April 20
ER Night with emoticon

From my Instagram; In ER for tension migraine

I had a terrible tension migraine all day, so I only logged that I ate breakfast at 7:30am and it was oatmeal with brown sugar.

 

I ended up in the emergency room for the tension migraine at about 8:30pm, which is how I found out what was actually going on.

Friday, April 21

Still had a horrid tension migraine, and it was all I could do to keep myself alive (with food and medications and lying on the couch wanting to be able to temporarily remove my head).

Saturday, April 22

My headache was about 99% gone, but I didn’t want to be too stringent with things. I took today as a self-care day to make sure my headache wouldn’t come back!

Sunday, April 23
  • 10:30am: oatmeal with brown sugar
  • 1:10pm: slice of cheddar cheese
  • 3pm: plain rice cake
  • 4pm: sunbutter
  • 4:30pm: refried beans with cheddar cheese
  • 8pm: steak (onion, garlic, salt, pepper, oregano, basil); mashed sweet potato (coconut cream, ghee); steamed broccoli
steak and sweet potatoes signed

Steak and Mashed Sweet Potato

Monday, April 24
  • 8:45am: slice of cheddar; small spoon of the edible cookie dough (I was running late for an appointment)
  • 11:30am: ¼ cup of dry oats; 2 slices of cheddar (I was in the car on the way home from said appointment)
  • 5pm: leftover mashed sweet potato
  • 7pm: chicken (basil, oregano, salt); lentil noodles (discovered I’m allergic to lentils, wonderful)
  • 9pm: edible cookie dough #3


Before the end of week four, I emailed Kara (the dietitian) with a huge list of questions and concerns. Because of everything that I have had to be dealing with, Kara decided to make some changes to my diet. I will discuss these changes in a separate post, as this post has gone on quite long enough already!

As always, let me know what recipes you would like to see!


Other LEAP Diet Posts:

The Case of the Missing Lizz

This last month has been such a blur for me. My health decided to skydive, without a parachute, and it hit the ground hard. I haven’t gotten quite this sick in a long time, and it’s just as miserable as I remember.

So, what exactly happened? Well, I do kind of mention it in these posts: Being “Normal” SickThe New Diet So FarMy Virus Has Returned, and I mention a little in my LEAP/MRT Diet: Phase 1/2, Week 2 post.

In summary: Right before starting the new diet, I got sick. Continue reading

LEAP/MRT Diet: Phase 1/2, Week 2

I started my LEAP diet on March 28th. I am starting with a ½ phase due to my daily headaches; since sudden food detox can cause headaches in someone without chronic headache, my dietitian didn’t want me to feel atrocious. However, I’ve still been having some issues with phase ½, but it could also be due to my poor health. (This post has details about the diet.)

Right before starting the diet, I ended up with a pretty nasty virus and a sinus infection (see this post for details about being sick while chronically ill). I also got an infected hangnail (common for me) on my thumb that just wouldn’t heal, so I ended up on oral antibiotics. Then, since I went to urgent care for my thumb infection, I picked up another virus. When I went back to urgent care (Dan had to call them to make sure they had all the tools I needed, because he thought I looked like death), it was confirmed that I had picked up influenza B. First virus and sinus infection were confirmed March 23, thumb infection urgent care visit was April 6, started showing signs that I had a different infection April 7, and an urgent care visit confirmed the flu April 9. It’s been a really rough several weeks. Continue reading

LEAP/MRT Diet: Phase 1/2, Week 1

I started my LEAP diet March 28th, with my ½ phase. Unfortunately, I’ve also been struggling with some severe acute illnesses as well, so it’s been hard to tell how much the diet is changing things. I was feeling a bit better for a few days, but then I seem to have relapsed and gotten really sick. Hopefully, I’ll get over whatever this is soon, and then we can see what the diet is doing!

Since everyone seemed to enjoy my weekly FODMAP diet lists, I thought I would do the same thing for the LEAP diet! Since I’m so extremely restricted on what I can eat, I have to get creative with food. There has been a lot of “from scratch” cooking, a lot of substitutions, and a lot of frustration. I’ve lost several pounds, because I’m still working on trying to figure out snacks and other quick food, so I’m not eating as much as I should be. Hopefully, I’ll get more energy soon and can actually spend more time cooking.

Week one of phase ½, I was cooking the entire week. Every second of my free time was spent in the kitchen, which would be fine if it didn’t require so much energy. I’m completely exhausted, but hopefully I can get a better routine down. Continue reading

My Virus Has Returned… With Enthusiasm

Being sick while chronically ill is hard. Like, really hard! Normal colds already last longer for us than the average person, thanks to our overworked immune systems… But I got to come down with an even better virus (please tell me you could taste the sarcasm there)! (This post will probably contain a lot of sarcasm, FYI.)

germ-158107_1280

It looks like this cold plans to stick around for the 4 weeks. Minimum.

Luckily, my sinus infection seems to have cleared up, almost entirely! Though pollen season is starting, meaning my sinuses are clogged again. I don’t think my sinuses are very swollen, however, due to a lack of sinus headaches!

A few days ago, through Thursday, I thought I was finally starting to feel better! Friday, however, was awful! My doctor did warn me that this virus tends to be a roller coaster: cruddy, better, cruddy, better, rinse & repeat. I was really hoping that I would just slowly get better.

Then, I woke up coughing. I had a little tickle Thursday, but I summed it up to allergies. Friday, I woke up and immediately started hacking. Hacking like I haven’t hacked in years. Wonderful, just wonderful. They weren’t dry coughs, but I wouldn’t call them very productive. I took cough syrup, and went about my day.

As the day wore on, however, things got worse. By 10pm, not even cough syrup could slow the constant coughing. I managed to cough enough from 9pm until midnight to lose my voice (almost completely). My throat feels as though it’s bleeding, and I keep gasping for air.

Poor Dan didn’t get to sleep until way last his bedtime because I kept needing things from him: medicine, the humidifier being set up, more medicine, and a cough drop. Yes, a cough drop. No, it’s very much not approved on my LEAP/MRT diet… But Dan reminded me that sleep is one of the most important things when sick, so if it will help it’s necessary. It did manage to slow the coughing somewhat, so, totally worth it! (I’m still coughing a lot, but now I can catch my breath before my next cough.)

I’m writing this post at 2am Saturday morning because I’m still massively struggling. My throat hurts horribly (I’m going to use some chloraseptic spray soon; you don’t swallow it, so it should be okay), I’m coughing a lot, my ribs and abs are sore from coughing and I’m just hoping I don’t bruise a rib (it’s happened before), my neck/shoulders/upper back are tense and sore from the coughing fits, I have horrendous hip/pelvis nerve pain, and my head throbs when I cough. I’m also getting random dizzy spells, which may be due to hyperventilating, and my low fever is back. Overall, this is awful!

Thumb Infection Handout and Thumb

(Handout from urgent care)  Pic is from my Insta story

I did start antibiotics today, though not for my cold… I managed to get my thumb horribly infected. All of my hangnails get infected when they tear (same thing happens if the skin splits around my nails). Usually, I can get the infection to clear up in a few days… Not this time. I finally went to urgent care when it wasn’t even mildly improved after a week! Apparently, I was doing pretty much everything right, I just needed some oral antibiotics to finish it off! I’m hoping they’ll also help boost my immune system enough to finally get over this virus. (I do realize antibiotics won’t help a virus directly. I’m thinking there may be a small bacterial component, which is drawing from my immune system, that the antibiotics can wipe out.)

I really hope I’m not still coughing like this in the morning… And I hope I can get some good sleep tonight!

The New Diet So Far

Please check out my first post about the LEAP diet that I’m doing: LEAP Results & My Program. That first post goes into detail about what the diet is and what I’m allowed to eat.

I’m still horribly sick (as I talk about in this post), so I’m having a hard time telling what is from being ill and what is from the diet.

I started the diet on Tuesday, the 28th; starting phase 1/2 as directed by my dietitian. However, since starting, I have felt horrendously ill. I’m not sure if my viruses have gotten worse, or if I’m experiencing the detox/withdrawl symptoms that this phase 1/2 is trying to reduce. I’m also not sure if some of it is from being removed from two of my (very helpful) supplements suddenly – I did my best to taper slightly. I was removed from my magnesium, which has been mostly controlling my fibromyalgia for several years now, and from my VSL #3, which has been extremely helpful in easing my IBS symptoms. This diet is supposed to reduce or eliminate both my fibro and IBS symptoms, but so far it’s not. Continue reading