LEAP/MRT Diet Phase ½, Weeks 3-4

The reason I decided to combine weeks 3 and 4 is because I didn’t log much during week 4. I go a bit more into detail as to the reason why not in “The Case of the Missing Lizz;” but to summarize: I’ve started getting tension migraines. I had one tension migraine from the afternoon of Wednesday the 19th until I went to sleep Friday the 22nd. It was still hanging around in a milder form on Saturday. Since that first one, I have had one every single afternoon/evening until I go to sleep that night. It’s been pretty miserable and I’ve been forgetting to log because of that.

I still had the flu during week 3, so most of my log pages are full of medications. Luckily, I had mostly recovered before the week was out. Though, I did come down with oral thrush thanks to the strong antibiotics I was put on for my thumb infection. (More in Missing Lizz post.)



LEAP Diet Phase ½, Week 3: April 11 – 17

Tuesday, April 11
  • 11:30am: oatmeal with brown sugar
  • 2:15pm: rice cake with sunbutter (sunflower seed butter)
  • 6:30pm: chicken noodle soup; steamed broccoli
  • 9:30pm: edible cookie dough #2
  • Fluids: 122oz (3.61L)
chicken noodle soup signed

Chicken Noodle Soup

Wednesday, April 12
  • 11:30am: oatmeal with brown sugar
  • 2pm: rice cake with sunbutter
  • 6:30pm: taco bowls (homemade refried beans, brown rice, ground beef, mild cheddar)
  • 9pm: Siggi’s with blueberries (only a few bites thanks to being sick)
  • Fluids: 89oz (2.63L)
Thursday, April 13

I went to my PCP and got diagnosed with oral thrush

  • 12pm: blueberry muffins
  • 1:54pm: slice of cheddar cheese
  • 4pm: plain rice cake
  • 8pm: homemade tortilla chips; taco bowl
  • Fluids: 77oz (2.28L)
Friday, April 14
  • 11:45am: spoonful of sunbutter; some uncooked oats (2 handfuls)
  • 3:30pm: chicken noodle soup
  • 8pm: chicken with oregano, garlic, salt; steamed broccoli; sweet potato fries (fail)
  • 9pm: taco bowl
  • 10:45pm: edible cookie dough #2
  • Fluids: 89oz (2.63L)
Saturday, April 15
  • 11am: oatmeal with brown sugar
  • 2:30pm: chicken (canned chunk chicken, cumin, salt); pinto beans; cheddar cheese
  • 7pm: noodles (rice and quinoa noodles from Trader Joe’s); steamed broccoli; steamed sweet potato
  • Fluids: I completely lost track of my fluids by the end of the day
Sunday, April 16
  • 12pm: oatmeal with maple syrup and blueberries
  • 2:45pm: rice cake with sunbutter
  • 6pm: beef-n-noodles (Mom’s version of beef burgundy, very diff, but modified for my diet; served over the rice and quinoa noodles)
  • 8pm: cheese
  • 9:30pm: edible cookie dough #2
  • Fluids: 66oz (1.95L)
beef n noodles signed

Beef-N-Noodles

Monday, April 17
  • 9am: oatmeal with brown sugar
  • 12:30pm: beef-n-noodles
  • 6pm: plain rice cake
  • 7pm: chicken (garlic, oregano, salt); mashed cauliflower (coconut cream and oil, pepper, salt, garlic)
  • 8:40pm: cheddar cheese
  • Fluids: 76oz (2.25L) (I may not have recorded everything)

LEAP Diet Phase ½, Week 4: April 18 – 24

Tuesday, April 18
  • 9:45am: oatmeal with brown sugar
  • 12:30pm: rice cake with sunbutter
  • 4:30pm: homemade tortilla chips
  • 6:45pm: burritos (refried beans, ground beef, oat/rice tortillas, cheddar cheese)
  • 8:45pm: edible cookie dough #2
  • Fluids: 87.28oz (2.58L)
burritos soft tortillas signed

Burritos

Wednesday, April 19

I stopped logging my fluids, it was tedious. I figured that I have plenty of data to get an average, and as long as my body is hydrated then I’m doing alright.

  • 11:45am: oatmeal with brown sugar
  • 3:30pm: rice cake with sunbutter
  • 7:30pm: beef-n-noodles
Thursday, April 20
ER Night with emoticon

From my Instagram; In ER for tension migraine

I had a terrible tension migraine all day, so I only logged that I ate breakfast at 7:30am and it was oatmeal with brown sugar.

 

I ended up in the emergency room for the tension migraine at about 8:30pm, which is how I found out what was actually going on.

Friday, April 21

Still had a horrid tension migraine, and it was all I could do to keep myself alive (with food and medications and lying on the couch wanting to be able to temporarily remove my head).

Saturday, April 22

My headache was about 99% gone, but I didn’t want to be too stringent with things. I took today as a self-care day to make sure my headache wouldn’t come back!

Sunday, April 23
  • 10:30am: oatmeal with brown sugar
  • 1:10pm: slice of cheddar cheese
  • 3pm: plain rice cake
  • 4pm: sunbutter
  • 4:30pm: refried beans with cheddar cheese
  • 8pm: steak (onion, garlic, salt, pepper, oregano, basil); mashed sweet potato (coconut cream, ghee); steamed broccoli
steak and sweet potatoes signed

Steak and Mashed Sweet Potato

Monday, April 24
  • 8:45am: slice of cheddar; small spoon of the edible cookie dough (I was running late for an appointment)
  • 11:30am: ¼ cup of dry oats; 2 slices of cheddar (I was in the car on the way home from said appointment)
  • 5pm: leftover mashed sweet potato
  • 7pm: chicken (basil, oregano, salt); lentil noodles (discovered I’m allergic to lentils, wonderful)
  • 9pm: edible cookie dough #3


Before the end of week four, I emailed Kara (the dietitian) with a huge list of questions and concerns. Because of everything that I have had to be dealing with, Kara decided to make some changes to my diet. I will discuss these changes in a separate post, as this post has gone on quite long enough already!

As always, let me know what recipes you would like to see!


Other LEAP Diet Posts:

The Case of the Missing Lizz

This last month has been such a blur for me. My health decided to skydive, without a parachute, and it hit the ground hard. I haven’t gotten quite this sick in a long time, and it’s just as miserable as I remember.

So, what exactly happened? Well, I do kind of mention it in these posts: Being “Normal” SickThe New Diet So FarMy Virus Has Returned, and I mention a little in my LEAP/MRT Diet: Phase 1/2, Week 2 post.

In summary: Right before starting the new diet, I got sick. Continue reading

LEAP/MRT Diet: Phase 1/2, Week 2

I started my LEAP diet on March 28th. I am starting with a ½ phase due to my daily headaches; since sudden food detox can cause headaches in someone without chronic headache, my dietitian didn’t want me to feel atrocious. However, I’ve still been having some issues with phase ½, but it could also be due to my poor health. (This post has details about the diet.)

Right before starting the diet, I ended up with a pretty nasty virus and a sinus infection (see this post for details about being sick while chronically ill). I also got an infected hangnail (common for me) on my thumb that just wouldn’t heal, so I ended up on oral antibiotics. Then, since I went to urgent care for my thumb infection, I picked up another virus. When I went back to urgent care (Dan had to call them to make sure they had all the tools I needed, because he thought I looked like death), it was confirmed that I had picked up influenza B. First virus and sinus infection were confirmed March 23, thumb infection urgent care visit was April 6, started showing signs that I had a different infection April 7, and an urgent care visit confirmed the flu April 9. It’s been a really rough several weeks. Continue reading

LEAP/MRT Diet: Phase 1/2, Week 1

I started my LEAP diet March 28th, with my ½ phase. Unfortunately, I’ve also been struggling with some severe acute illnesses as well, so it’s been hard to tell how much the diet is changing things. I was feeling a bit better for a few days, but then I seem to have relapsed and gotten really sick. Hopefully, I’ll get over whatever this is soon, and then we can see what the diet is doing!

Since everyone seemed to enjoy my weekly FODMAP diet lists, I thought I would do the same thing for the LEAP diet! Since I’m so extremely restricted on what I can eat, I have to get creative with food. There has been a lot of “from scratch” cooking, a lot of substitutions, and a lot of frustration. I’ve lost several pounds, because I’m still working on trying to figure out snacks and other quick food, so I’m not eating as much as I should be. Hopefully, I’ll get more energy soon and can actually spend more time cooking.

Week one of phase ½, I was cooking the entire week. Every second of my free time was spent in the kitchen, which would be fine if it didn’t require so much energy. I’m completely exhausted, but hopefully I can get a better routine down. Continue reading

It’s Almost Time to Get the LEAP Results!

My LEAP/MRT follow-up with the dietitian is on the 21st, so just 7 days now! While I’m really nervous about what I will be able to eat, I’m very excited because I think this will really help!

For an overview of LEAP/MRT, and why we are going that route, be sure to check out my More Dietitian Changes post!

Dan and I have definitely noticed that there are a few meals that make me feel quite ill, so we decided it would be fun to make some guesses. There are also foods that cause significant oral symptoms (itching, tongue rash, etc) and that seem to trigger my eosinophilic esophagitis (E0E). Obviously, Dan was only able to make his guesses based on the times I’ve told him something seems off. These guesses are just for if we think the foods will be “not green” (either yellow or red), not the degree to which they will be no good. Continue reading

More Dietitian Changes – LEAP/MRT Program

The dietitian has changed things again! I saw Kara on February 6th to follow-up on the low FODMAP diet. As I mentioned in my last low FODMAP roundup, the diet really didn’t seem to be doing anything for my symptoms. Since it wasn’t helping at all, she took me off the diet completely! Of course, I’m still eating sort of low FODMAP since I still have so many groceries… but I’ve been able to eat some of my favorite foods that were taken away from me (burritos is a big one).

Obviously, we have just changed what we’re going to do. For now, I’m on a free diet (I can eat anything I want), but it won’t be staying that way at all. Nope. We have moved forward with the LEAP/MRT protocol. LEAP = lifestyle eating and performance, and MRT = mediator release test. I got my blood drawn for the testing February 10th, and it’ll take a little bit for the results to come back.

blood-test

Image: The Times, UK (credited in the article to Getty Images)

Continue reading

The SI Joint Injection

At the end of my MRI Results post, I mentioned that I would be going forward with a cortisone injection in my right sacroiliac (SI) joint… then I kind of disappeared! Oops! I didn’t mean to disappear, I swear. However, part of my disappearing act was actually due directly to the injection.

I got the injection on Friday, January 27th, at 1:30pm. Yes, the timing matters.

Continue reading

Back Problems – MRI Results

As you probably know, I’ve been struggling with some serious back pain and problems since October. Using this pain scale, I have been at an eight since October. Sometimes I get lucky and might drop to a six, but that is extremely rare. It all started so suddenly, that my physical therapist – I’m in constant physical therapy to help keep my body functional despite my health problems – got quite concerned. She thought it would be a good idea if I went to an orthopedist.

The orthopedic appointment was a nightmare. Continue reading

Out of the Blue Back Problems

Over the last several weeks, I have been dealing with the first massive complication from my joint hypermobility syndrome (JHS) that I’ve ever had… At least, that’s what we think it is as of right now. If you’ve been following me on Instagram, then you know what’s been going on. If not, let me fill you in now:

I’ve had several vertebrae in my back dislocating. Yes, several. My pelvis has also been trying to dislocate in several places, and my SI joints have been severely dysfunctional (dislocating and getting jammed). I also subluxed – partially dislocate, but it pops back into place by itself – my left hip the other day. Obviously, I’ve been in pretty severe pain for a few weeks.

Continue reading

Goodbye, Topamax

After a few weeks of dealing with increasing side effects, I am now saying goodbye to my Topamax. I didn’t actually realize how many side effects I was truly dealing with until I had my neurology appointment yesterday, and the appointment ended up freaking me out a little bit. Now that I know how many side effects I was actually experiencing, I really wish I had gone in quite a bit earlier, but at least I finally got in. However, I’m terrified about coming off the Topamax at all, because I’m scared my migraines will come back with the debilitating daily frequency I was experiencing before I got put on it.

Side Effects

So what side effect made me finally call my neurologist? Uncontrollable muscle twitching in my eyelid that was so intense it was blurring my vision:

 

We’ve pretty much all had muscle twitches in our eyelids, right? Usually, it only happens to me when I’m tired. Sometimes, it’ll happen just because, but it doesn’t happen very often. Well, I took this video because it started happening A LOT! This was the third day it had happened in a row. This was about the sixth time in those three days, and this was after my shower… where it had been happening for most of my shower. Thankfully, it stopped very shortly after I got dressed. But I went straight to the pharmacist and had them do a medication review. The only medication that caused muscle twitching was Topamax, and it also had a lot of eye problem side effects (scarily enough). The next day it twitched for about three or four hours straight, then it also twitched for most of the evening. Thankfully, the last two or three days I’ve had a break from the twitching (it’s actually gotten painful now).

Continue reading