This weekend I’m having a rough time with my “new” body. I’m really missing being able to everything and not die. My fatigue is killing me and I feel physically beat up. I had a lot of fun, but I feel physically awful. Emotionally, the physical stuff is killing me. Ugh. This is just my life now, but I don’t like it.
Category Archives: Quick Updates
Stumped
I’m sitting here trying to compile a list to get groceries for my upcoming colonoscopy prep. I’m a picky eater, crazy picky, always have been. Mostly, the puffiness is due to a hypersensitivity texture and unknown food allergies and stuff like that, and has developed into a fear of unknown. I’m working on it. But it doesn’t help when I get slapped with super restrictions. Now I’m just staring at the list on the verge of tears wondering how I’ll survive. I realize if I drink water I won’t actually die, but I don’t know what to eat. Ugh. I’m not going to have any strength after this.
I’m going to have to post about it. I’ll have Dan document the diet portion of the prep.
Another Cold
I somehow caught a cold again. For several days I’ve been sleeping forever (like, until 1pm). My GI pulled me cold turkey off the Amitiza, though, so I thought I was just having weird withdrawals. That was, until yesterday today.
Yesterday, I woke up and Dan bright me some cereal so could shower. In the shower suddenly it felt like my body was full of cement. Then attack of the phlegm. Then I realized I was feverish. It never improved. And I realized my throat felt odd. Eventually I noticed my tonsils were bright red and puffy.
Today, all the same but worse. Definitely sick. And I’m very explosive. And my throat actually hurts now and I have a cough. Not happy. Ugh.
Hopefully I’ll feel better soon.
Full Body Headache, Or So It Feels…
My entire body feels like it has a migraine. I’m in so much pain today. My back is STILL shot. I thought after Pilates yesterday, my back would feel better, but I can’t seem to get ahead of this. My fibro pain is almost always first prominent in my hips, so I’m pretty sure that is why I’m just stuck in this cycle. The daily migraine also hit REALLY early today, and I was struck down by about 11am, when I woke up at 10am. Ugh. I have been lying on the couch, with the room dark and the TV on VERY quiet just because my ADHD makes me really bored if I’m not doing anything at all. I finally had to call Dan at work because the waves of pain were too much, and then came to the realization I absolutely had to take Tramadol and Excedrin (an hour apart for my poor stomach). I had buttered noodles and Ensure for lunch, and my stomach is still killing me despite Zofran. No idea if it’s the medication or the migraine or the pain or a combination of everything or something completely different. I can barely think and I feel horrendous. I’m so sick of lying on the couch. I’m so sick of headaches.
Daily pills (AM top hand, PM bottom hand), and my usual place and position of lying on the couch.
Stomach Bug?
Apparently, I’m feeling awful because I have gastroenteritis. Or at least, that’s what my GI thinks. Gastroenteritis = the stomach flu. Stupid stomach bug. I don’t have a fever that we’ve noticed, but I’ve been downing pain meds like crazy so it might be suppressed I suppose.
He told me to hold off on my Amitiza for three days, then restart it on the next higher dose (since before the bug I didn’t think it doing anything). If my symptoms don’t come back, then it was just a bug. We shall see. Here’s hoping I survive.
Digestion Shmigestion
Obviously, things have gone kaplooey again. I didn’t think my new medication was doing ANYTHING at all, because I had gone back to “normal” (my normal for 20+ years has been constipation). Yesterday, I suddenly got violently attacked by severe diarrhea. Today, it continues. I have a call in to the GI. Hopefully, he knows what to do.
One of my best friend’s baby showers is on Sunday, so I HAVE to feel at least a little better by then…
Update About “Internal Struggle”
Previous Post: Internal Struggle
My mom decided to unfollow my blog. She wasn’t upset, but she didn’t want me to feel like I needed to hold back. While I’m kind of relieved, because now I can be completely honest without stressing about the tenuous relationship I have with my family… I’m unsure about how communication is going to work regarding my illnesses and such now. Oh well, I guess we’ll see. Maybe now we’ll actually talk.
I do have a post I’m trying to figure out how to structure. It might turn into a series of posts. Recently, I’ve been struggling at coming to terms with my Joint Hypermobility Syndrome (JHS) (potential EDS). Why have I been struggling? Because it’s a condition I was born with and that means I have had it my entire life. Why is that a struggle? Because I didn’t get diagnosed until just recently, even though I’ve had symptoms and very definitive signs my entire life. Yeah. So I’m trying to figure out how to structure the post/series properly and how to make it informative and therapeutic. It’s been a major part of my thinking lately, which is why I haven’t really been posting.
Well, I also haven’t been posting much because I’ve been in a pain and Tramadol induced haze for the past several days due to my back. Stupid back.
Hopefully, things will start to come together soon.
Still Struggling With Pain
I spent today in one of the worst flares i think I’ve ever had. My pain put me into a daze; functioning was almost impossible. It was as if  I  was trying to listen to the radio inside a tunnel. Even my vision was screwed up. When I my first dose of Tramadol for the day, it didn’t seem to work at all. Well, it made me nauseous, but the pain was doing that too. I’ve had a horrid day. The second dose of Tramadol worked a bit, and the vision improved a little.
Hopefully, I can get a little sleep and my Pilates class tomorrow will help instead of hurt. I want to function again!
Finding Life's Silver Sun 