I’m an hour and a half into the prep fluid, so I don’t have long to type this out before I have to run to the restroom again. But I’m STARVING! I have been on a liquid diet for two days, thanks to the intensity of the prep I’m on, and all I want is REAL FOOD!!!! Gawd I’m hungry. Anything, really, just real bloody food.
The prep tastes horrid.
I’ll actually blog this later. Gotta go, lovies. Like those old commercials:
“Gotta go gotta go gotta go right now, gotta go gotta go gotta go!”
This weekend I’m having a rough time with my “new” body. I’m really missing being able to everything and not die. My fatigue is killing me and I feel physically beat up. I had a lot of fun, but I feel physically awful. Emotionally, the physical stuff is killing me. Ugh. This is just my life now, but I don’t like it.
I’m sitting here trying to compile a list to get groceries for my upcoming colonoscopy prep. I’m a picky eater, crazy picky, always have been. Mostly, the puffiness is due to a hypersensitivity texture and unknown food allergies and stuff like that, and has developed into a fear of unknown. I’m working on it. But it doesn’t help when I get slapped with super restrictions. Now I’m just staring at the list on the verge of tears wondering how I’ll survive. I realize if I drink water I won’t actually die, but I don’t know what to eat. Ugh. I’m not going to have any strength after this.
I’m going to have to post about it. I’ll have Dan document the diet portion of the prep.
As I mentioned at the beginning of yesterday’s post (The Personal Hell That Is My IBS), my GI is starting to suspect that my IBS may not actually be IBS after all. Why has he come to this conclusion? Well, for the same reason I am not completely shocked by his conclusion, actually: because I just do not respond well to any treatment for IBS that I get put on. For some reason, everything we do to try to treat my digestion problems just seems to cause me an entirely new set of issues. My system just doesn’t behave at all like it’s supposed to, to anything at all. Wonderful.
Unfortunately, my gastroenterologist is now starting to suspect that my IBS may actually be something more than IBS. I have been dealing with my severe IBS-C for more than 20 years, so this is both not surprising and very frustrating. (Yes, I am only 26. I literally cannot recall a time in my life that I have not been constipated unless I was horribly ill and afflicted with diarrhea instead.) If I was told to name one singular illness that causes me the most negative impact on a daily basis, and that I have to most carefully plan my life around, I would choose my IBS. Yes, above the POTS that makes me so dizzy I can’t think straight, above the fibro that can make a gentle breeze feel like I’m being sand blasted, above the allergies that make my eyes feel like they’re full of sand, and above the asthma that can make me feel like I’m trying to run a marathon on top of Mt. Everest. My IBS literally runs my life and it is relentless.
(Disclaimer: This post is going to talk about poop, just in case you hadn’t figured that one out; you might not want to be eating.)
What is IBS? Continue reading
I somehow caught a cold again. For several days I’ve been sleeping forever (like, until 1pm). My GI pulled me cold turkey off the Amitiza, though, so I thought I was just having weird withdrawals. That was, until yesterday today.
Yesterday, I woke up and Dan bright me some cereal so could shower. In the shower suddenly it felt like my body was full of cement. Then attack of the phlegm. Then I realized I was feverish. It never improved. And I realized my throat felt odd. Eventually I noticed my tonsils were bright red and puffy.
Today, all the same but worse. Definitely sick. And I’m very explosive. And my throat actually hurts now and I have a cough. Not happy. Ugh.
Hopefully I’ll feel better soon.
The last several weeks, I’ve been absolutely miserable with allergy symptoms: crazy amounts of phlegm in my nose/sinuses, crazy amounts of post-nasal drip, even more intense nausea than normal (probably from swallowing all the phlegm), extremely itchy skin, itchy eyes, itchy ears, itchy nose, etc. It’s been extremely painful actually.
So why all the symptoms? I just assumed it’s because EVERYTHING is blooming. There is so much cotton blowing around (from cottonwood trees) that it looks like there was a giant pillow fight somewhere; the cars have been yellow for weeks thanks to the amount of pollen in the air.
I have decided to do genetic testing for Ehler-Danlos Syndrome, even though I know that EDS Type 3 (Hypermobility Type)  doesn’t have a genetic marker. However, when I look at the list of typical symptoms for classic EDS, I have a lot of those too, so I want to be sure I don’t have that one. I do fit EDS Hypermobility Type far better, but I want to know for sure.
So I called my rheumatologist, who had mentioned giving me a referral to a geneticist if I wanted to pursue testing. He sent a referral over to the geneticist and when I got the phone call, I find out they are the ONLY adult geneticist in the entire state of Colorado! Because of that, the wait to get in is obscene. I am on the calendar and now I’m on the wait list, just in case an opening appears.
My appointment?
Finding Life's Silver Sun 