Tag Archives: chronic illnesses

Visbiome High Potency Probiotics – Review

I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.

I am not a doctor! This post is not intended as medical advice. This post is for information purposes only. Before beginning any new medical routine, always consult with your doctor and/or pharmacist. By continuing, you release me (Elizabeth Bulfer) from any and all liability.

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This review is about Visbiome high potency probiotics; specifically, the regular strength capsules.

Why am I reviewing Visbiome high potency probiotics? Well, I’ve been struggling with severe IBS-C (irritable bowel syndrome, constipation prominent) for over 20 years. I’m only 26 years old. My IBS-C problems started very shortly after I started eating solid foods. Apparently, as a toddler, I used to scream and cry in the corner to try to avoid using the restroom. I first got an IBS diagnosis when I was in college, about 2010, but there hadn’t been any other testing done so I actually ignored that diagnosis. Then, just recently, I got diagnosed with IBS-C again. This time, however, I really trusted the doctor and we have done extensive testing for all sorts of other illnesses (and ruled them out). After listening to my history of “bathroom issues,” he concluded that I have definitely been living with severe IBS-C my entire life. You can read a more detailed account in my post: “The Personal Hell That Is My IBS” (warning, it’s quite detailed/graphic and emotional). I’ve only just started to get some semblance of control over my IBS-C thanks to the use of high potency probiotics and an incredible gastroenterologist. Continue reading →

A Different and Deep Depression

Looking on the “Insights” tab of my stats, it’s clear to see how little I’ve been posting. It’s also extremely clear when you look through my archive. I was looking through my archive the other day, because I’m planning out a blog overhaul (keep an eye out for changes!), and made a startling realization: my posting frequency dropped off significantly with the passing of my grandmother.

Grama and I were extremely close. She was, by far, my closest relative. Since then, I’ve been having an odd kind of identity crisis. I’ve also been struggling with a deep and different kind of depression than I’m used to… I’m used to depression, I’ve been struggling with it for most of my life, but this is somehow completely different. I didn’t even really realize that it was happening until I made the realization about my blog posting and started thinking about it.

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Continue reading →

Goodbye, Topamax

After a few weeks of dealing with increasing side effects, I am now saying goodbye to my Topamax. I didn’t actually realize how many side effects I was truly dealing with until I had my neurology appointment yesterday, and the appointment ended up freaking me out a little bit. Now that I know how many side effects I was actually experiencing, I really wish I had gone in quite a bit earlier, but at least I finally got in. However, I’m terrified about coming off the Topamax at all, because I’m scared my migraines will come back with the debilitating daily frequency I was experiencing before I got put on it.

Side Effects

So what side effect made me finally call my neurologist? Uncontrollable muscle twitching in my eyelid that was so intense it was blurring my vision:

 

We’ve pretty much all had muscle twitches in our eyelids, right? Usually, it only happens to me when I’m tired. Sometimes, it’ll happen just because, but it doesn’t happen very often. Well, I took this video because it started happening A LOT! This was the third day it had happened in a row. This was about the sixth time in those three days, and this was after my shower… where it had been happening for most of my shower. Thankfully, it stopped very shortly after I got dressed. But I went straight to the pharmacist and had them do a medication review. The only medication that caused muscle twitching was Topamax, and it also had a lot of eye problem side effects (scarily enough). The next day it twitched for about three or four hours straight, then it also twitched for most of the evening. Thankfully, the last two or three days I’ve had a break from the twitching (it’s actually gotten painful now).

Continue reading →

Supplements Carry Risks Too

Don’t get me wrong, I am not just blindly wanting you to follow “Big Pharma” down the rabbit hole of taking more drugs and needing drugs to counteract the side effects of those drugs. Actually, I am all for all sorts of different combinations of lifestyles. If you love taking pharmaceuticals, then go take your pharmaceuticals and I’m so happy that they make you feel better! If you love taking supplements, then please go take your supplements and enjoy your life! If you love combining the two, then go do that too and enjoy feeling better! Woot for feeling better and managing our symptoms the best way we know how!!!

Anyway. Now that that is over, here we go. The point of the post 😛

Some people don’t realize that supplements can carry just as many risks as pharmaceuticals can. In fact, I would argue that, because of the state of “common knowledge” they are more dangerous. Why do I say that? Simply because people read an “all natural” label and are willing to pop it into their mouth without learning anything else about it… leading to potentially deadly consequences.

Wait, did I just say deadly?

Yes, yes I did. Continue reading →

Experimenting With Treatment

Right now, we’re (my GI and I) experimenting with treatment for small intestine bacterial overgrowth – aka SIBO. I am going to be taking Xifaxan for two weeks, and hopefully the delayed gastric emptying will improve. We’re also going the motility improve.

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He decided to just do the treatment instead of testing first because he didn’t like how many I’ve been thru already, and apparently the SIBO test isn’t very accurate. Xifaxan isn’t supposed to be absorbed into your system much at all, so there really isn’t supposed to be too many side effects, so I decided to just for it. I figure my daily issues are so miserable, I’d rather just try it and hope it’ll help.

So far, I haven’t been too happy: gassy and lots of bathroom trips. My fatigue is also a little wacky, but my period is also poorly timed again. However, my stomach had been marginally better. Hopefully that means it’s been helping.

Stomach Issues Return

Normally after vacations, due to all the restaurant and junk food, I am horribly stopped up.

For some reason, this time, I now have diarrhea. It’s not “running to the restroom every few hours” bad, but the last three days have all had multiple loose stools. Today is the worst of it so far. But the frequency is way off. I’ve only gone about twice each the last two days, which is weird.

My stomach though feels horrid. It feels like I’ve been hit in the lower abdomen by a baseball bat and my colon has been set on fire. No idea what triggered this.

I do not have a fever.

I’m glad I see my GI on the 31st. Hopefully it doesn’t get any worse, and I really hope it doesn’t last that long…

My Mind Has Been Busy

I’m a little preoccupied at the moment. I do apologize.

Recently, I’ve decided I need to take a giant step in the direction of my mental health. The universe was sending me massive and glaring signs of which direction I needed to take. It’s kind of a rough one, and I’m just at the beginning. Unfortunately, I’m not comfortable writing about it yet, and I don’t have anything definitive (which is why I’m not comfortable writing about it). It’s also consume a rather large amount of my mental energy as of late, so I haven’t been able to focus on much else right now.

Hopefully there will be news to report soon. I am still working on the colonoscopy series. I also owe one of my best friends her maternity photos that I took as a favor to her, so that has been taking time away from the blog as well. But I promise, the plan is to get back to blogging soon!

Love and spoons to you all.

Minimal Bodily Cooperation, But Still Cause For Gratitude

My body seemed to level back out again, weight wise. When I picked Dan up from the airport, I was still nauseous but it was dinner time and I really wanted a French dip sandwich from Mimi’s Cafe. Instead of only eating half (like usual), I ate about 3/4 of it and half of my fruit bowl. The next day I managed to eat most of my Qdoba nachos for lunch too!

The rest of the weekend I’ve been eating lighter, but I did go back up those three pounds. The nausea is a little more manageable, but still pretty bad. We’ll see what happens this week. At least the rapid weight loss seems to have stopped for now – that was unnerving.

I hope you all had a good weekend.

Body, What Are You Doing?

I’ve been exhausted this week. Completely exhausted. It’s understandable: the weekend was pretty crazy and Dan has been in Florida all week for a rocket launch (which means I’ve been doing more normal at the house).

But, the confusion comes from something else. We got a new scale because we realized our old one was broken. I’ve been weighing myself regularly (daily) because I lost a bunch of weight before the colonoscopy so I’m curious. Last week, I was holding steady.

This week?

I’ve lost one pound PER DAY.

That’s not normal.

Now, I’m still at a healthy weight. My BMI is still in the normal range (high normal, actually). I wanted to lose a bit of weight actually, so I’m not that upset about it being gone, I’m just worried about the speed and sudden change.

The weirdest part is that I don’t actually look much different physically. I’ve lost 3-4 pounds in 4 days and look pretty much exactly the same. Though we’ll see if Dan thinks so.

I’m going to start keeping track of my calorie intake and daily activities to see if maybe there is just a crazy imbalance I’m unaware of, out if I need to get to my doctor.

But seriously, body, what are you doing now?

Nausea and Dysautonomia

Today, Dysautonomia International shared an article to their Facebook  about nausea and vomiting, and how the two don’t always go hand in hand and how they tied to the nervous system. The text that accompanied D.I.’s post points out that nausea is a common symptom for dysautonomia patients.

As many of you know, I have been suffering with chronic nausea for years. Lately, it’s been so bad that, at times, I struggle to eat. That’s actually part of why my GI decided to do the colonoscopy. As of my last appointment, he didn’t believe I had primary gastroparesis, but he did say I definitely have what is called “delayed gastric emptying” which is caused by my whole system running slow so it tells my stomach to stop working. Very similar, but different causes. He is thinking he might do more testing though, later, just to be sure.

I am wondering if the reason my nausea is so bad is because it has multiple causes?

Anyway, I found the article extremely interesting and really wanted to share:

Nausea and Vomiting: Not Always in Sync by Pharmacy Times