Tag Archives: fibro

I Feel Like the Sky Looks

It’s very cloudy outside. Normally, I love cloudy and overcast weather… but the sudden cold that has accompanied it isn’t making me too happy.

Yesterday, I slept until after noon. The “Reformer for Recovery” class that I normally do on Wednesdays starts at 12:30. Obviously, I didn’t go to that. At about 4:30, however, I decided that the cold was messing with my hips too badly to skip Pilates entirely for a whole week (Joleen was booked solid for this coming Monday). I decided to do the beginning level “Core Training” class, which is a hybrid between mat and reformer.

I did alright during class. My arms, neck, and shoulders are definitely messed up though. Today, I’m paying for it. The class did help from the waist down, but it feels like my upper body has been run over by a large truck. My depression isn’t helping, and the pain isn’t helping my depression. Hopefully, I can have a good day for my birthday (Saturday the 19th). Please, Universe?

“Official Uniform of the Dysautonomia Warrior” – another shirt and two questions

 

I found a pretty and comfortable looking tee shirt! (It says it’s made out of very soft materials.) I’m thinking it’ll probably be great for lounging around the house in the summer.

What kinds of merchandise do you think will work well with this design? I have a basic sweatshirt and now this tee.

What other illnesses/conditions do you think I should make this design for? (Example: “Official Uniform of the Fibromyalgia Warrior”)

We All Have Limits

Over the years, I have surprised myself by being able to continue on past what I thought was my limit. It really is amazing. I don’t really know what the alternative is… I guess crawling into bed and never coming out again? Trust me, there are definitely days where that is all I want to do, but I have two lovely little kitties that require feeding and loving.

Pain LevelThis neck/shoulder/back stuff, however, seems to be pushing it. I think I finally found a limit. A hard and fast limit.

I’ve been debating posting this because… well, because. This is going to be a very frank discussion on hitting limits and depression. I don’t like to discuss my depression, at least not the part of it that’s active. Depression tends to gain a lot of pity, and I hate pity. Depression is a part of who I am, it’s something I live with daily, it’s something that is always going to be a part of me. However, depression does not define me, and usually I have a pretty good grip on it. Usually.

Continue reading →

What is With This Pain?!

Seriously.

Yesterday, especially last night, I was in a lot of pain. I was in so much pain that I couldn’t get to sleep until after 4am. Obviously, that meant there was no way I was going to try to wake up at 6am to get to my classes.

I slept until after 11am, and I am not really feeling better. My neck really hurts, which kind of makes sense after the MRI results, and my entire back hurts. The nerve pain in my right arm refuses to go away, and it will no longer pop (which would give it temporary relief at times). There is now nerve pain in my left arm that won’t go away either. My head is killing me (for two days). And, on top of everything else, my hips hurt.

I don’t really know why this is happening… but I suspect it might actually have to do with my neck. My neck and back pain and stiffness have been getting steadily worse for weeks. I’d always written the neck pain off as being from weak muscles and bad posture, so I never thought anything of it. Apparently, I should have mentioned it at some point. I’m wondering if my recent uptick in pain could be due to something in my neck getting worse? I guess I’ll find out on Tuesday (I had the wrong day, but the right date, in my head). Hopefully, the results won’t be anything bad…

MRI Results – Preliminary

I know many of you have been waiting for the results with me (which means more to me than I think you realize). I heard from a nurse at my doctor’s office today.

Straight to the point: my brain is NORMAL! This is definitely good news 🙂

relief

My spine, however, is not. Continue reading →

Probably Not Good

 

I’ve been having odd neurological symptoms as of late:menschliches nervensystem

  • I’m still getting regular headaches, almost daily. Some of them are rather intense, but I’m not sure if the others are low intensity or if I got used to them.
  • My arm pain is still really intense still… but a little tiny bit better because I’ve been taking Tramadol regularly. I can’t stand nerve pain like that. Unfortunately, my left arm has started to get a lot of the same symptoms (tingling, numbness, elbow pain, and neural tension). At least the left arm isn’t as intense as the right. (arm 1, 2, 3)
  • My nausea seems to be getting worse. I don’t know if that is from my nervous system or something else. (nausea 1, 2, 3)
  • The thoracic vertebra (the ones at the ribs) pop constantly, and painfully. I think my spine is compressing for some reason.
  • Muscle weakness is getting a lot worse for some reason. I’m exercising a bit more, but it feels like I’ve been exercising less.
  • My muscles burn every time I stretch them. Even if I stretch them after sitting on the couch or lying down. I don’t know why my muscles are always burning like this when I stretch them.
  • Dizziness is coming back slightly, though my cardiologist’s MA thinks it might be from my body adjusting to the fact that my resting heart rate is now in the upper 60s now that it’s controlled.

As you can see, troublesome. Continue reading →

Yoga and Painting = My Saturday

Yesterday, was a lot of fun! Exhausting, but definitely worth it 🙂

First, we did restorative yoga. Over the course of an hour, we only did about 6 positions, holding each one for quite some time. Apparently, it’s supposed to be good for fibromyalgia sufferers because of the use of props and such (according to The Chopra Center). restorative-yogaUnfortunately, my body didn’t seem to like it much. I think it’s because my body hates staying in one position for very long, and that always aggravates my fibro. It was, however, good for my P.O.T.S since it was all done lying down and there was no physical exertion. Well, I was having to spend a lot of physical and mental energy relaxing the muscles that my body refused to relax (new ones would tense up during poses and so it was a constant game of tag around the muscles). It was nice, however, because being on the floor and using all of the props made some positions a lot easier. I just wish my body was okay with holding positions for long periods of time. I’m definitely feeling it today.

Then…