I Had a Great Day, and Then…

… It was gone.

Now I’m writhing around in bed trying desperately to find a position for some relief while also trying to move agonizingly slowly because I don’t want to shake my stomach up and vomit. Don’t know what happened, but suddenly the urge to vomit appeared and it won’t go away, even with Zofran. Dan thinks I ate too many allergens. I don’t think that’s the whole picture, but all I do know is I feel awful.

I don’t want to vomit because last time I started I needed to go to the ER to stop… But I also kind of want to so I might feel better. What would be really nice would be the ability to remove my stomach until it calmed down. Oh, and sleep would be fantastic.

Probably Not Good

 

I’ve been having odd neurological symptoms as of late:menschliches nervensystem

  • I’m still getting regular headaches, almost daily. Some of them are rather intense, but I’m not sure if the others are low intensity or if I got used to them.
  • My arm pain is still really intense still… but a little tiny bit better because I’ve been taking Tramadol regularly. I can’t stand nerve pain like that. Unfortunately, my left arm has started to get a lot of the same symptoms (tingling, numbness, elbow pain, and neural tension). At least the left arm isn’t as intense as the right. (arm 1, 2, 3)
  • My nausea seems to be getting worse. I don’t know if that is from my nervous system or something else. (nausea 1, 2, 3)
  • The thoracic vertebra (the ones at the ribs) pop constantly, and painfully. I think my spine is compressing for some reason.
  • Muscle weakness is getting a lot worse for some reason. I’m exercising a bit more, but it feels like I’ve been exercising less.
  • My muscles burn every time I stretch them. Even if I stretch them after sitting on the couch or lying down. I don’t know why my muscles are always burning like this when I stretch them.
  • Dizziness is coming back slightly, though my cardiologist’s MA thinks it might be from my body adjusting to the fact that my resting heart rate is now in the upper 60s now that it’s controlled.

As you can see, troublesome. Continue reading

Why Does It Take So Long To See Doctors?!

Seriously.

Why?!

Good news is, I have an appointment setup to see a neurologist that specializes in neuromuscular disorders but works in an office with other neurologists that specialize in other things like MS and vascular neurology.

The bad news is, the earliest appointment is for February 26th. But better than never.

Good thing I have plenty of Tramadol and metaxalone.

I Need Some Research Help – Possible New Muscular Symptom

Today was my Reformer for Recovery Pilates class. We started by doing a few gentle squats. When I say a few, I mean three or four. Gentle means a very shallow squat, just as far as is comfortable, and no added weight at all. I did one just fine. Then every single other one had my quadriceps (thigh muscles) burning. We weren’t holding them, we were just dipping down and straightening up. The muscles were only burning when I was in the squat position. I was barely squatting. As soon as I’d stand up, the burning would stop. The burn is EXTREMELY intense, and makes me want to collapse; pushing through the pain is almost impossible.

light squat

This photo shows me squatting (I took it just for this post) about the same I did in class. I may be a little lower than I was in class, actually. And yes, getting this photo burned really badly again, but I am currently on 1/2 a Tramadol and a full metaxalone so it wasn’t as intense. As you can see, these aren’t shouldn’t be very taxing squats.

Continue reading

Unexpected Perspective Shift

I don’t believe in failure
Cause I know the smallest voices, they can make it major

-from “Seven Years” by Lukas Graham-

I heard this song for the first time today. I was in the car, driving home from school. This song is a really good song, with a unique beat and beautiful, heartfelt lyrics. The DJ had compared it to the “100 Years” by Five for Fighting. I wouldn’t put it quite at the same level, but it’s very similar in a lot of ways. But this specific quote really struck me at the time. I just watched the video a second time and didn’t notice it as clearly. Obviously, it was one of those things I really needed to notice at the time.

Click Here to read how this quote shifted my perspective

A Little Scared and A Lot Worried

I just got back from my Monday appointment with Joleen. I finally decided, after the scary emotional swings this weekend, to fully disclose the full pain in my arm (I hadn’t really been hiding it consciously, I think I was mostly lying to myself). There were several episodes this weekend where the pain in my arm got so bad it pushed me to tears.

After talking with Joleen, and explaining everything, she seemed worried. I don’t like when my doctors get nervous. But, she is right. Normally, when my body randomly acts up, it just takes a few weeks to get it back into sync again. My arm pain came out of no where. I didn’t do anything, and it suddenly was killing me. We’ve been stretching my nerves, trying to release the tension, and rubbing out the knots for several weeks… and we haven’t made any progress.

If anything, I seem to be slowly getting worse…

Saturday Nerves

Saturday (today) is a bachelorette party for a friend of mine. We’re going to be doing restorative yoga, dinner, then Picasso and Wine (do a guided painting and you can get a drink while you do it if you want). It should be a lot of fun!

But…

The Snooze Button

When I wake up, I hit snooze until I get out of bed. The amount of times I’ve dozed off and missed something is embarrassing. Today, I’ve hit snooze for almost two hours… Oops. But it goes to show how much energy chronic pain can take out of you. I’m exhausted. I got over 9 hours of sleep.

Crazy Weather = Crazy Body

I’ve been in a LOT of pain recently (see “Why Today is a Bad Health Day“). I thought it was from the nerve massages and being far too busy, but now I don’t think so. I’m still in a lot of pain, and my appointment with Joleen on Monday was really gentle, and I slept most of yesterday.

Continue reading