Happy Holidays from The Bulfers!

I hope you were all able to find some joy in this holiday season in whatever circumstances you found yourself in – I know the holidays can be very difficult for some people.

Personally, I extremely overdid it and my body crashed hard on Christmas day. Thankfully, our Christmas day is very relaxed and so I kept from overdoing it even more. Unfortunately, on the 26th, I woke up in extreme pain because I had managed to dislocate my L5 vertebra and my sacrum (again). My vertebrae dislocate rotationally, meaning they rotate like they’re supposed to, but get stuck rotated and won’t go back into place properly without manual manipulation. I was at a “chronic illness ten” meaning that I would have gone to the ER had I not known exactly what it was and instead just kept doing what little I could to keep my brain distracted. Experiencing “chronic illness ten” pain is frustrating, because unless someone knows you extremely well they have no idea how badly you are truly suffering.

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Overexertion in Chronic Illness

I’m sure you’ve experienced overexertion at some point, and it was unpleasant. It’s possible even without a chronic illness. Children are particularly susceptible because they don’t know how to pace themselves and that’s why you will see them passed out cold in random places and positions because there bodies are like “nope, we’re stopping now!”

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Computers and Migraines

Even though my body has been cooperating recently, and I’ve been able to do a lot more, I haven’t been “healthy.” I’m still experiencing pain, taking a slightly slower period of time to recover than an “average” person, and having to deal with some other aspects of my chronic illnesses. Even though I was able to walk around on Mt Evans and I enjoyed a car trip and short hike with my husband to look at the fall colors in the mountains, I’ve been having some struggles. Continue reading

Sometimes, There are High Points – Mt Evans Adventure

It’s easy to fall into the trap of only showing the negative aspects of chronic illness. When we’re “healthy” (for us) and feeling well, we tend to go out and live! When we’re sick and feeling awful, that’s when we think “I haven’t written in a while, and this is something interesting to write about.” If we’re just so-so then we’re probably doing something that we deem ‘boring’ and don’t write about it. I try to keep my blog focused on my entire life, not just the chronic illness pieces, but it’s definitely easier to write about the “bad times.”

arm-2029989_1280.pngHowever, I have been quite lucky lately: my body is cooperating. For the most part, I’ve been able to feel relatively normal in the past few weeks. No, I’m not ‘better’ but I’ve been able to do more than I had been able to do in over a year! My Pilates classes went surprisingly well, my physical therapy was going really well, and I’ve been able to be significantly more active day-to-day! Of course, I’m waiting to accidentally run off a cliff (metaphorically of course), but until then I’m really excited that my body is letting me be ‘normal’ most of the time! Continue reading

Soothing Fibromyalgia Symptoms Naturally

Fibromyalgia. It’s different for everyone that has it, but one thing remains constant: no one likes having it. skeleton-1940281_1920Most people with fibromyalgia agree that it storms into your life like a hurricane, knocks you flat on your back, and takes up residence in your life like an uninvited house guest that just doesn’t take a hint!

Since everyone is so different, I will try my best to touch on the main symptoms that I see almost everyone suffering from, but my main focus is simply on my personal experience with fibromyalgia and what I have done to ease the symptoms I have. Continue reading

Top 6 Tips for Dealing with Summer Pain Flares

beach-1867524_1920For me, summer equals significantly more physical activity. I’m sure most people that live in an area that experiences winter will agree: when the weather is “nice” we do as much as possible to try to make up for being inside all winter. When you are chronically ill, however, more physical activity can also equal significantly more pain.

My fibromyalgia is the main cause of my pain in the winter, but I experience different pain in the summer. I haven’t been able to figure out how big a role each of my conditions plays into the summer pain, but I have developed a few tricks for dealing with it. My summer pain is extreme muscular fatigue, joint pain, and an all over bruised sensation; I do experience nerve pain, but it’s usually do to a pinched nerve thanks to my joint problems instead of due to my fibromyalgia. I also have to juggle my dysautonomia which includes a lot of problems with temperature regulation (leading to overheating) and swelling. Continue reading

Long Awaited Genetics Appointment Results!

I made an appointment to see the only adult geneticist in the state of Colorado over one year ago. (Read more: here.) It was actually fourteen months ago. The appointment was because I wanted to know for sure if I had something more specific than the joint hypermobility syndrome my rheumatologist diagnosed me with (as a working diagnosis).

So I waited… and my appointment was just on Monday! I’m extremely excited about it, and it was one of the best appointments I’ve ever had.

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Benefits of Wintergreen Essential Oil

It’s the age of computers! That also means, unfortunately, that it’s the age of chronic back pain and chronic neck/shoulder tension. Even those that are not stuck to a computer for eight or more hours a day have a lot more neck and shoulder tension than people used to. relaxed-148083_1280This chronic tension is due to how much time we spend looking forward and down. Are you reading this on your phone? Even if you’re not, I bet you’ve spent a decent amount of time on your phone in the past two hours. Are you working on homework at a desk (if you’re in school)? Do you get home from work and flop onto the couch to unwind with dinner and movie? Do you have to commute in traffic? All of these things contribute to the epidemic of chronic neck and shoulder tension, tension headaches, chronic back pain, and general muscle stiffness.

Thankfully, there are things that can help! You do not have to be stuck with the chronic tension and pain.

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A Day in the Life: Caretaker/Patient & Husband/Wife

(To see the first post in this mini-series, check out When And How Dan Became My Caretaker)

Dan and I have been married for almost four years now, and together for almost eight and a half. (A sappy look at our relationship: My Personal Romantic Comedy.) When we first met, I had a few health issues, but I was relatively healthy (and quite active). Unfortunately, in the past five years, my health has started declining in leaps and bounds: it will be stable for a bit, then suddenly I’m blindsided by new symptoms and pain, then we’ll work hard to stabilize it and it will happen all over again. Through all of this, Dan has been my primary caregiver. Yes, it’s stressful, and it’s not always perfect, but it actually works relatively well for us.

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Dan’s graduation, a month after getting engaged and only a few days before our 3rd dating anniversary!

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When And How Dan Became My Caretaker

Someone on my Instagram recently said “I’d love to hear about you and Dan’s relationship with him as your caretaker” (see comment on this post), which made me realize that I really don’t talk about that much. I think it’s difficult for me to talk about, simply because it feels natural to me. However, I will try to explain things the best I can. Continue reading