Hey guys, just wanted to let you know I’m up skiing for a few days, so I probably won’t be able to get much posted for the next few days… of course, I didn’t get a chance to schedule posts before I left. I did bring my computer, so I might get a chance. Otherwise, it’ll have to wait until Wednesday!
Tag Archives: postural orthostatic tachycardia syndrome
So I took a ton of photos at Zion National Park. Here are a few of my favorites:
Zion National Park Photos
Chronic Living – Buzzfeed
Living With A Health Problem | Buzzfeed
Here’s a collection of good quotes about living as a young adult with chronic health issues.
It’s Giving Tuesday
I hadn’t even heard of Giving Tuesday until today… apparently, I’ve been living under a rock? I think I just have difficulty keeping track of which “named” days get added onto this specific part of the season…
Anyway, Giving Tuesday makes me feel much better about the world than the others. One invisible illness blogger I read regularly, Let’s Feel Better by Ilana, also works for the Global Genes Project. She wrote about the work they do and some of the non-profits they work with!
Check out Ilana’s Giving Tuesday post!
Featured in Ilana’s post: Dysautonomia International, Jeffery Modell Foundation, EB Research Partner (EB is the “butterfly” condition)
First Road Trip With POTS – Short Thoughts
This has been my first road trip since my POTS diagnosis, and it has been a learning experience. I’ll write more about it later, but here are some quick points.
- You will be too hot and too cold… Sometimes at the same time.
- You are going to get crazy dizzy because road trips are dehydrating
- Clothing is obnoxious
- Fast food and soda are simultaneously awesome and evil
- Bladders are tiny
- There is no such thing as being over prepared
In September, while my mom was here, we went driving to look at some fall color! We ended up on Mt Evans. Both Dan and I were quite impressed that my mom could get out of the car and walk around up there!!! There are people who live in Denver (5280 ft above sea level), and have their whole life, that cannot walk around at 14,000 feet above sea level. My mom is from only 1700 feet elevation, AND has adult onset asthma! Go Mom! Here are some fun pictures from there:
Mt Evans – from September
Working Medication, Not Working Insurance
Got a call from Dr J’s (cardiologist) office earlier today. Apparently, my insurance rejected the medication that is actually working. Ugh! Luckily, though, they have samples available for me. They also said that they are going to try to work something out with the rep (I’m guessing the one that leaves them samples) for some sort of patient assistance thing. At least they recognize that it’s very important for me to be on this medication. Hopefully, the medication will let me do cardiac therapy on my own and heal enough that I don’t need it for too long.
Medication is Actually Working?!?!
You know you have POTS when you get overly excited by your standing heart rate being 80bpm… And the medical assistant does too! Blood pressure was also down to 112/72 for once! Yay!
I am currently taking Corlanor and Bystolic for my heart. I am not a doctor, please consult your’s before changing any medication… especially before changing heart medication.
October Update: Post-op, Chronics, Life
I had my post-op on October 6th, so a while ago now. Oh wow, time flies. I’m sorry I haven’t had a chance to update those of you that have been reading all of the surgery updates, school has been extremely time consuming (more on that later).
Short Life Update… because, Insomnia
Mom is leaving to head back to CA tomorrow… actually, today… in, like, 5 1/2 hours. And I’m not sleeping. Oops. I told her I’d make her some maps. So what do I do? Decide I can’t stand the new way that Google prints maps anymore, so I decide to make my own. Now, they turned out really well. But I’m dumb, “Yes, I feel ill… so let’s spend three plus hours making maps from screen shots and typed directions.” Oh well, she shouldn’t get lost at least 
Though I suppose their could be random construction detours that weren’t marked… you never know on road trips.
Brain ‘splode!
Finding Life's Silver Sun 